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pinkp0p

742d

has anyone else here come across an incompetent doctor when they were young who kinda messed up your scoliosis treatment and failed to find the true underlying problem (for me it was chiari) until it was almost too late to prevent something severe? if so what was ur experience? for me when i was 4 i was diagnosed with scoliosis (one of my many symptoms leading to my chiari diagnosis) and he did nothing but give me a back brace to wear for years. eventually with seeing that no matter what my scoliosis only got worse my parents contacted a neurologist who was baffled by the fact in the 5 years i was with the prior doctor he hadnt once got me an MRI since my scoliosis never improved and with my other symptoms she found out i had chiari and syrinx so bad if it had been caught later id be paralized. thankfully we were able to get the decompression surgury and shrink my syrinx, and now, im 18 and have virtually no more symptoms or issues :)

    • Kat_A

      718d

      I have very bad scoliosis syrinx and posterior fossa fullness and EDS. Suspect chairi and occult teathered cord ... they are all related. Tethered cord can tug on the brain stem.

    • Kat_A

      718d

      Have you looked into tethered cord syndrome?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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