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Hello š Tracy, 44, here and new to the app. Curious if anyone here is on immunosuppressants for SLE, MCTD, or RA? If so, how ābad did it getā to switch to these meds? I canāt take NSAIDs due to IBD, but my joint pain from SLE is through the roof. Iām nervous to start suppressants with Covid still rampant, but my quality of life is bottom of the barrel right now with join pain. Appreciate any/all responses. š
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Joint pain
Chronic Generalized pain
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Hi Tracy . Welcome
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Have you considered energy healing? I know it sounds wacky but I use it to control my seizures. I've worked on people with various joint pain with positive results. Just a idea.
@Stillwater do you mean Reiki? Yes, Iāve done some Reiki training in the past. Iām open to anything. It helps me keep a positive outlook but hasnāt helped with the joint pain.
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@TrixNY not if you're working on yourself no.. you would need someone you can trust to work you. I can discharge seizures energy but not pain which sucks.
I just started taking enbrel for RA, mainly because my hands are really bad & Iām hoping to stop the degeneration
@LB have you had any side effects from the enbrel yet?
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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