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TrixNY

Updated 11mo ago

New to the App and Looking for Advice on Immunosuppressants for Autoimmune Diseases

Hello 👋 Tracy, 44, here and new to the app. Curious if anyone here is on immunosuppressants for SLE, MCTD, or RA? If so, how ‘bad did it get’ to switch to these meds? I can’t take NSAIDs due to IBD, but my joint pain from SLE is through the roof. I’m nervous to start suppressants with Covid still rampant, but my quality of life is bottom of the barrel right now with join pain. Appreciate any/all responses. 🙏

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LB

2y

I just started taking enbrel for RA, mainly because my hands are really bad & I’m hoping to stop the degeneration
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TrixNY

2y

have you had any side effects from the enbrel yet?
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Stillwater

2y

Have you considered energy healing? I know it sounds wacky but I use it to control my seizures. I've worked on people with various joint pain with positive results. Just a idea.
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TrixNY

2y

do you mean Reiki? Yes, I’ve done some Reiki training in the past. I’m open to anything. It helps me keep a positive outlook but hasn’t helped with the joint pain.
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darkdoula1972

2y

Hi Tracy . Welcome

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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