New to the App and Looking for Advice on Immunosuppressants for Autoimmune Diseases

Hello 👋 Tracy, 44, here and new to the app. Curious if anyone here is on immunosuppressants for SLE, MCTD, or RA? If so, how ‘bad did it get’ to switch to these meds? I can’t take NSAIDs due to IBD, but my joint pain from SLE is through the roof. I’m nervous to start suppressants with Covid still rampant, but my quality of life is bottom of the barrel right now with join pain. Appreciate any/all responses. 🙏

Your answer

darkdoula1972

2y ago

Hi Tracy . Welcome

Stillwater

2y ago

Have you considered energy healing? I know it sounds wacky but I use it to control my seizures. I've worked on people with various joint pain with positive results. Just a idea.

TrixNY

2y ago

do you mean Reiki? Yes, I’ve done some Reiki training in the past. I’m open to anything. It helps me keep a positive outlook but hasn’t helped with the joint pain.

2y ago

I just started taking enbrel for RA, mainly because my hands are really bad & I’m hoping to stop the degeneration

TrixNY

2y ago

have you had any side effects from the enbrel yet?

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