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TrixNY

744d

Hello šŸ‘‹ Tracy, 44, here and new to the app. Curious if anyone here is on immunosuppressants for SLE, MCTD, or RA? If so, how ā€˜bad did it getā€™ to switch to these meds? I canā€™t take NSAIDs due to IBD, but my joint pain from SLE is through the roof. Iā€™m nervous to start suppressants with Covid still rampant, but my quality of life is bottom of the barrel right now with join pain. Appreciate any/all responses. šŸ™

Top reply
    • darkdoula1972

      744d

      Hi Tracy . Welcome

    • darkdoula1972

      744d

      Hi Tracy . Welcome

    • Stillwater

      744d

      Have you considered energy healing? I know it sounds wacky but I use it to control my seizures. I've worked on people with various joint pain with positive results. Just a idea.

      • TrixNY

        744d

        @Stillwater do you mean Reiki? Yes, Iā€™ve done some Reiki training in the past. Iā€™m open to anything. It helps me keep a positive outlook but hasnā€™t helped with the joint pain.

        • Stillwater

          744d

          @TrixNY not if you're working on yourself no.. you would need someone you can trust to work you. I can discharge seizures energy but not pain which sucks.

    • LB

      744d

      I just started taking enbrel for RA, mainly because my hands are really bad & Iā€™m hoping to stop the degeneration

      • TrixNY

        744d

        @LB have you had any side effects from the enbrel yet?

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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