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TrixNY

589d

Hello 👋 Tracy, 44, here and new to the app. Curious if anyone here is on immunosuppressants for SLE, MCTD, or RA? If so, how ‘bad did it get’ to switch to these meds? I can’t take NSAIDs due to IBD, but my joint pain from SLE is through the roof. I’m nervous to start suppressants with Covid still rampant, but my quality of life is bottom of the barrel right now with join pain. Appreciate any/all responses. 🙏

Top reply
    • darkdoula1972

      589d

      Hi Tracy . Welcome

    • darkdoula1972

      589d

      Hi Tracy . Welcome

    • Stillwater

      589d

      Have you considered energy healing? I know it sounds wacky but I use it to control my seizures. I've worked on people with various joint pain with positive results. Just a idea.

      • TrixNY

        589d

        @Stillwater do you mean Reiki? Yes, I’ve done some Reiki training in the past. I’m open to anything. It helps me keep a positive outlook but hasn’t helped with the joint pain.

        • Stillwater

          589d

          @TrixNY not if you're working on yourself no.. you would need someone you can trust to work you. I can discharge seizures energy but not pain which sucks.

    • LB

      589d

      I just started taking enbrel for RA, mainly because my hands are really bad & I’m hoping to stop the degeneration

      • TrixNY

        589d

        @LB have you had any side effects from the enbrel yet?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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