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23d

What's the toughest social challenge you've faced because of your illness, and how did you manage it?

Top reply
    • Jada2001

      0d

      you don't have to explain nothing to anyone, No one needs explanation for what is going on with you. It's you. T❤️ the Lord knows your heart and he's the only one we have to answer to, so let em stare and think what ever they want to because we dont owe them nothing. So live your life your life in peace and keep your focus on the Lord Jesus Christ

    • Jada2001

      0d

      you don't have to explain nothing to anyone, No one needs explanation for what is going on with you. It's you. T❤️ the Lord knows your heart and he's the only one we have to answer to, so let em stare and think what ever they want to because we dont owe them nothing. So live your life your life in peace and keep your focus on the Lord Jesus Christ

      • mizzcali19

        0d

        @Jada2001 amen 🙏

    • Pumpkin4649

      0d

      I just assume people think I'm antisocial. No able to even go baby shower. But I don't care anymore what they may be thinking about me. Feel no worth being present with pain. Better staying home and painless days :) if I really miss socialising, I just invite them to my home, that's it. Hope you get strength to survive one more day! Today is enough to handle. Praying for you all :)

      • Bre19

        0d

        @Pumpkin4649 thank you

    • _Rat_

      2d

      Well I could take this in many different directions depending on which issue I’m talking about. Currently my adhd and (suspected) autism have been giving me loads of social and academic trouble. I don’t know how to manage it yet. I’ve realized my struggles in communication and I’m working on bettering it and being clear with people about my struggles. I lost a friend because of it, but my other friend and I have reflected on how it wasn’t a healthy friendship. Lots of ups and downs.

      • Bre19

        0d

        @_Rat_ it is very difficult

    • wrenishere

      4d

      Not having supportive friends during disability appeal. Friends and coworkers not understanding when I'm not able to be present and active. Wanting to engage in community opportunities but missing out because of my conditions.

      • Bre19

        2d

        @wrenishere I'm so sorry

    • FreyaB

      5d

      University. Currently almost finished my first year and debating whether I'll be able to go back

      • Bre19

        5d

        @FreyaB I understand this so much it is very difficult

    • AlissaWithSyncope

      7d

      Dating ❤️

      • Bre19

        7d

        @AlissaWithSyncope I can understand this it has not been an easy road for me as well

    • Jinx57

      8d

      Letting go of relationships that died off due to my illness.

      • Bre19

        8d

        @Jinx57 I really relate to this what I do is try to understand why they left and sometimes it's because they treated me not so well

    • royalty

      9d

      Getting out of the house and hanging out with friends is a huge challenge, especially when I don't know if my illnesses will affect me more than usual during a scheduled event.

      • Bre19

        8d

        @royalty I understand that feeling it makes it difficult to have fun in the moment

    • faerywyrm

      14d

      I get involved behind my screen. I'm not terrified when there's something protecting me from the actual process of interaction

      • Bre19

        7d

        @faerywyrm I felt this its difficult I've challenged myself but my social battery drains so quickly

    • hydroepilepic21

      14d

      Just making friends

      • Bre19

        8d

        @hydroepilepic21 I totally felt this I've tried so many ways to make friends

    • TheCosmicStarSystem

      14d

      Living Life every day.

      • Bre19

        7d

        @TheCosmicStarSystem that is totally understandable

    • Jules78

      21d

      Being social period

    • JaneG

      22d

      My mum, who is elderly and cant walk all the time (but can sometimes) gets abused!!!? She just says to them, "you don't want what I've got! And they shutup. People are A'holes... It's a shame but it's the truth.

      • Bre19

        7d

        @JaneG I'm so sorry this is going on that's not okay

    • utiguy

      23d

      I suffer from limited mobility due to degenerative back issues, which is bad enough, but I also suffer from urinary incontinence. I am starting to make myself get out and about more this spring, but would literally go weeks at a time without leaving my apartment over the winter. Between the pain and difficulty walking, and fear of an incontinence accident, I dreaded even the thought of leaving the house. The spring I am hoping that surgery can correct the incontinence issues, which actually keep me homebound more than the back pain does. For example, with the back pain I could take a cruise, but I'm not going to do so with the level of incontinence I have been suffering. I'm not boarding a boat with that many supplies in hand! It also means very little domestic travel as I do not want to wet the bed in a hotel. At home is bad enough. Male urinary incontinence is treated as anomalous which only aggravates the stigma. Note to front end workers at Walmart and supermarkets everywhere: keep those scooters plugged in and charged please. There's nothing worse than seeing a line of scooters, none of which are plugged in. I can't tell you the number of times I've gotten to the far corner of a Walmart and had my scooter die on me. And it's really to their economic advantage to have scooters charged, maintain, and at the ready. There are times I will turn around and walk out if there are no scooters. I will definitely shop for shorter period of time with the lower ticket value if scooters are not available.

      • Bre19

        0d

        @utiguy that must be super tough

    • BoneDustWoman

      23d

      The invisibility and dynamism of my illness are my biggest social challenges. I don't "look sick" or "act sick" sometimes (even when I am), so people forget or doubt me when I say I can't do things. When I say I've spent all weekend in bed, people say, "Oh, that must be nice," as if it was a luxury. I just try to shrug it off because their lack of understanding doesn't impact how I navigate this illness.

      • Bre19

        0d

        @BoneDustWoman I'm so sorry

      • Jigglebean

        23d

        @BoneDustWoman the dynamism is especially one of my challenges as well! It's so difficult to explain to people that everyday is a new issue for me and it seems as tho I'm just faking.

    • jums

      23d

      Still struggling and coping

      • Bre19

        8d

        @jums that's ok it sounds like you're working on it and that is what matters

    • Jessica.alikehealth

      23d

      😥

    • Hudson_Hawk

      23d

      I was injured at work and have limited use of my legs and after CABG I get tired easy. But because I am a muscular 63 year old man. When I use the handicap parking. I am bombarded with attacks that I don't look like I need that space. And when I need to get help in the store to move around. I use a driving cart I encounter the same attacks. I have learned how to explain that not all people that need assistance have outward medical conditions

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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