Looking for Support with ILD Diagnosis

Try to exercise as much as you can without overdoing it. This will give you a little more energy during the day. Do only what your body will allow but try to do a little more exercise each time. I really believe this helps me because I also have a lot of fatigue due to ILD, myositis and antisynthetase syndrome.

I also have ILD. Since 2016. It's one of a few off shoots of a rare autoimmune disease I have, Myositis/antitisthetase syndrome. It will not get better or go away. It is a scarring in your lung and it can't be repaired. However you can do pulmonary rehab to strengthen what is still good. I was on oxygen 24/7 at first, but I no longer need it, except for sleeping. As with everything, I have to be careful and not overdue it. Fatigue is very common. I live with it daily. Get to know your body and rest when your body says rest. Talk to your pulmonologist and they should direct you on things you can do to help. And research, my favorite thing. It helps me to understand what I'm dealing with. Also support groups help ALOT.