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Hello, I'm newly diagnosed with IIH or Pseudotumor Cerebri. I have struggled with losing weight and staying fit my whole life. How do you deal with all of the new restrictions that comes with managing the illness, like losing weight and keeping it off and the side effects that come with taking acetazolamide?
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Acetazolamide
Pseudotumor Cerebri
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I’m working on my diet and started working out learning from my aunt who is a fitness trainer. As for the meds I take that same one and am in big trouble without it. I have eat a low Oxalate diet or else I get calcium based kidney stones that are really painful. There can be a reason for the diagnosis depending on the person. Based on my mri, I am either missing or have one really tiny fluid carrying vain in my head. One side it’s obvious there is the normal vain, the other side it’s not there or is faintly there. So therefore my head can’t carry the full fluid capacity thus causing IIH
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When I started taking the medicine it actually help me lose weight. There isn’t an actual reason for the diagnosis
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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