Newly Diagnosed with IIH: Struggling with Weight Loss and Side Effects

Hello, I'm newly diagnosed with IIH or Pseudotumor Cerebri. I have struggled with losing weight and staying fit my whole life. How do you deal with all of the new restrictions that comes with managing the illness, like losing weight and keeping it off and the side effects that come with taking acetazolamide?

Your answer

Theinnovater13

2y ago

I’m working on my diet and started working out learning from my aunt who is a fitness trainer. As for the meds I take that same one and am in big trouble without it. I have eat a low Oxalate diet or else I get calcium based kidney stones that are really painful. There can be a reason for the diagnosis depending on the person. Based on my mri, I am either missing or have one really tiny fluid carrying vain in my head. One side it’s obvious there is the normal vain, the other side it’s not there or is faintly there. So therefore my head can’t carry the full fluid capacity thus causing IIH

Ardonna4

2y ago

When I started taking the medicine it actually help me lose weight. There isn’t an actual reason for the diagnosis

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines