Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

SaltyZebra

2y ago

Hypermobile Ehlers Danlos Diagnosis and Joint Pain Management

Hi everyone! Just wondering if anyone has a hypermobile Ehlers danlos diagnosis and what testing your doctors did to diagnose you? Also anything that helps manage joint pain?

Your answer

avatar

Javen

2mo ago

My doctor told to me to do light exercises to start strengthening the muscle around the joints. They also told me not to wear any braces for pain because it could risk weakening the muscles more. The advice was to wear braces if you are doing an activity that could pop something out of place. I squeeze stress balls to strengthen my hands and lift cans of soup on repeat to strengthen my arms. These are the tips my provider gave me.
avatar

spoonii

2y ago

Hi! I have hEDS. My diagnosis was very fast and simple it seemed to the doctor. All my doctor had me do was a few test such as bending my fingers back or leaning down to put my flat hands on the floor. Not sure how it goes for other people so it could be completely different testing and such for you but that’s how it went for me. And to help with the pain, usually my ankles and knees bother me so i’ve got medical wraps for my ankles to keep them in place which seem to ease the pain a little bit. And for my knees i got some compression braces that you just slide over your knees to keep them in place and that seems to help to.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc