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Looking for Support with Hydrocephalus

Kod

517d

what's up you guys im here cause my doctor said it was best for me to see others with the same condition as hydrocephalus :/

1

4

4

Dizziness

Nystagmus

Hydrocephalus

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Top reply
    • Chronicdecay

      326d

      I was diagnosed at 25. Doctors had no explanation as I'd had no head injuries. Took 2 years and a dozen surgeries, but they finally got the shunt placed somewhere stable. Still have dizziness/equilibrium issues, positional vertigo, and nystagmus. But it's been 15+ years since my last surgery.

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    • Chronicdecay

      326d

      I was diagnosed at 25. Doctors had no explanation as I'd had no head injuries. Took 2 years and a dozen surgeries, but they finally got the shunt placed somewhere stable. Still have dizziness/equilibrium issues, positional vertigo, and nystagmus. But it's been 15+ years since my last surgery.

      1

      Reply
    • Tracks

      326d

      I’ve had it since birth also. Free feel free to talk if you need.

      1

      Reply
    • ButterflyBry

      436d

      Hi, im Bry I have hydrocephalus, have so since birth.

      0

      Reply
      • Hydrogirl76

        330d

        @ButterflyBry I've had Hydrocephalus since birth too

        0

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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