Need advice on my hydrocephalus shunt

hi I'm Angelica Gonzales I have hydrocephlus my shunt was placed at 6months old and it's on my right side and I have a magnetically abjustable shunt i have been to 4 different hospitals because my head has been feeling weird latley like pressure and sometimes I get a burning senation in my head and I'm scared all the hospitals I have been to tell me it's swollen but don't think I need surgery at this time this has been going on for a few years and it's just getting worse i don't want anything else to go wrong but I can't seem to find a good doctor to actually take the time to really look at me and tell me whats wrong if it's my shunt or something else what should I do cuz I'm scared