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Buggaboos

809d

What has your experience and journey with Hydrocephalus been like?

Top reply
    • Livingasazebra

      550d

      I have dandywalkercyst so I got diagnosed at 1 with both hydrocephalus and dandy walker and by 8 years old I was very ill and got the shunt fitted

    • Livingasazebra

      550d

      I have dandywalkercyst so I got diagnosed at 1 with both hydrocephalus and dandy walker and by 8 years old I was very ill and got the shunt fitted

    • Tomatoface

      674d

      Never knew I had it until a few years ago after a skating accident. Main issue is visual problems (binocular vision dysfunction), like getting headaches in stores (I call it “torture”). And looking at a phone is painful. Used to get vertigo and fall to the floor after turning my head, but not anymore…wondering if it was the caffeine… And after another car accident, it changed slightly. Grocery store trips were slightly less excruciating…not sure why

    • Summer33

      808d

      In my early life no significant signs but a couple of years ago I experienced visual changes and challenges due to increased intracranial pressure

      • Tomatoface

        674d

        @Summer33 same

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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