My Hydrocephalus Journey: Sharing My Experience

I have dandywalkercyst so I got diagnosed at 1 with both hydrocephalus and dandy walker and by 8 years old I was very ill and got the shunt fitted

Never knew I had it until a few years ago after a skating accident. Main issue is visual problems (binocular vision dysfunction), like getting headaches in stores (I call it “torture”). And looking at a phone is painful. Used to get vertigo and fall to the floor after turning my head, but not anymore…wondering if it was the caffeine… And after another car accident, it changed slightly. Grocery store trips were slightly less excruciating…not sure why