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726d

When were you diagnosed with Hydrocephalus?

Top reply
    • sandy1981

      5d

      At birth I am 42

    • sandy1981

      5d

      At birth I am 42

    • Debs80

      344d

      ❤️I was diagnosed at 12 weeks.ive 3 shunts and have had 43 head ops in 42 years.

    • Bella23

      386d

      When I was born

      • Livingasazebra

        384d

        @Bella23 same! Do you have dandywalkercyst?

    • Livingasazebra

      438d

      1 years old bc I have dandy walker cyst as well

    • Tomatoface

      562d

      I never knew about it until 27, so wondering how doctors didn’t know… 🤨

    • Donnie1995

      672d

      At birth. Had my first surgery when I was 9.

      • Livingasazebra

        437d

        @Donnie1995 do you have dandywalkercyst or syndrome?

    • ArtsyRedhead

      677d

      At 2 years old I got my first shunt- then a revision at 4 yrs old. That one lasted until I turned 40- and just had a revision.

    • Buggaboos

      697d

      The age of 14 and they said I had it my whole life they just never caught on

    • Scar_Maddy

      709d

      Birth

    • thecatholicteen

      721d

      At birth

    • Amus

      725d

      At birth ***

    • Amus

      725d

      At or shortly after!

    • bookwormsb6

      726d

      I was born 2 months premature, and I got brain bleed, which caused my hydrocephalus. So, long answer short, I got diagnosed sometime shortly after being born

      • Debs80

        344d

        @bookwormsb6 bless you 💕

      • Tomatoface

        562d

        @bookwormsb6 I was also born almost 2 months premature fyi

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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