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783d

When were you diagnosed with Hydrocephalus?

Top reply
    • Pookie1214

      29d

      I was 18. But at at about 10 months I was hospitalized with blood clots on the brain because of shaken baby syndrome

    • Pookie1214

      29d

      I was 18. But at at about 10 months I was hospitalized with blood clots on the brain because of shaken baby syndrome

    • sandy1981

      62d

      At birth I am 42

    • Debs80

      401d

      ❤️I was diagnosed at 12 weeks.ive 3 shunts and have had 43 head ops in 42 years.

    • Bella23

      443d

      When I was born

      • Livingasazebra

        441d

        @Bella23 same! Do you have dandywalkercyst?

    • Livingasazebra

      495d

      1 years old bc I have dandy walker cyst as well

    • Tomatoface

      619d

      I never knew about it until 27, so wondering how doctors didn’t know… 🤨

    • Donnie1995

      729d

      At birth. Had my first surgery when I was 9.

      • Livingasazebra

        494d

        @Donnie1995 do you have dandywalkercyst or syndrome?

    • ArtsyRedhead

      734d

      At 2 years old I got my first shunt- then a revision at 4 yrs old. That one lasted until I turned 40- and just had a revision.

    • Buggaboos

      754d

      The age of 14 and they said I had it my whole life they just never caught on

    • Scar_Maddy

      766d

      Birth

    • thecatholicteen

      778d

      At birth

    • Amus

      782d

      At birth ***

    • Amus

      782d

      At or shortly after!

    • bookwormsb6

      783d

      I was born 2 months premature, and I got brain bleed, which caused my hydrocephalus. So, long answer short, I got diagnosed sometime shortly after being born

      • Debs80

        401d

        @bookwormsb6 bless you 💕

      • Tomatoface

        619d

        @bookwormsb6 I was also born almost 2 months premature fyi

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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