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Chronicallychill420

907d

Hi! I was diagnosed with UC in 2008. I was prescribed Mesalamine (Lialda), Mercaptopurine (6-MP), and folic acid and told I’d be on those medications for the rest of my life. In 2013, I discovered the medicinal benefits of Cannabis during a severe flare up. It helped with pain management and made food tolerable. In 2017, I decided to take charge of my health and changed my diet/lifestyle. I was able to come off all medications and achieved remission for 4 years! Unfortunately, the stress of 2020 ruined that with a pretty severe flare up. After a round of Flagyl and Prednisone, I was back in a brief remission. In July 2021 I had what started as a mild flare up but it was soon escalated with a bad case of c diff. My doctors said the disease has progressed and recommended Entyvio. I’m very anti-pharma and hate the idea of being on a pharmaceutical medication for the rest of my life. Has anyone successfully come off of a biologic/Entyvio and achieved remission through a more holistic path? Any insights on the pros/cons of Entyvio are appreciated as well 😊

Top reply
    • Chronicallychill420

      763d

      I have had success with Visbiome probiotics though! Kind of scared to stop taking them. Pretty traumatized from the c diff experience 😐

    • Chronicallychill420

      763d

      I have had success with Visbiome probiotics though! Kind of scared to stop taking them. Pretty traumatized from the c diff experience 😐

    • Chronicallychill420

      763d

      After several months on Entyvio and Mesalamine my symptoms are definitely reduced. Some bloating when I eat but I really can’t imagine reducing my limited diet even more 😥 I’ve been extremely tired, joint pains and mood swings which I thought were symptoms of prednisone withdrawal and then COVID. Now I’m thinking it might be the Entyvio. So unmotivated to eat better and exercise which I’m sure would help 😔

    • Oli_saurus

      835d

      Sadly noo Entyvio didn’t do it for me, and neither did Remicade, or Stelara. Currently trying Xeljanz as a last hope to keep my intestine. Good luck

    • Beepo

      836d

      Hi! I know this is super late. I’ve never taken Entyvio but I have been taking Mesalamine and Budesonide. For a while I was only on Mesalamine but they added Budesonide again after the stresses of 2020. I also changed my diet but has been on and off. I honestly recommend trying either VSL #3 or Visbiome probiotics. (Visbiome I think is cheaper). They’ve honestly helped me a lot! After a month of taking them I was back in remission for a while (until I stopped taking them since 2020 hit and I wasn’t working as much so it got expensive). But both worked amazingly for me. You can use either one.

    • Colitisgirl

      856d

      I am literally in the exact same boat-- 2021 put me into a huge flare and my doctors are now prescribing Entyvio. Would love to hear experiences with this medication, and any holistic paths people have taken to help.

    • Fernando

      895d

      Hey, I’m treated with entyvio. As I was told, entyvio is a biological selective drug. The word selective means that it affects only the cells in the bowels and not at the rest of the body, which I guess is a good thing. As for the side effects, my doctor told me I can suffer from headaches, cold and joints pain - these are the most common. For now, I sometimes suffer from strong headaches, but I’m still taking the drug

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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