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Superman21

83d

I went in for my usual check-up, feeling fine, and then my blood test came back with a high lymphocyte count. my Doctore is checking for mantle cell lymphoma. I hadn't heard about it before that. It's all been a bit overwhelming. Do you have any advice on how to navigate this? What should I do next?

Top reply
    • Michele.PatientPower

      40d

      @fl137 @fl137 Plus it's great that it's recent - from 2023! Thank you

    • CalamityLeslie

      57d

      Under no circumstance google it . It will scare you terribly. Dont jump to conclusions until testing is done and the doctor tells you what it all means .Wishing you the best

      • Michele.PatientPower

        40d

        @CalamityLeslie @CalamityLeslie Great advice! So many of us forget that Google is not an MD!

    • fl137

      67d

      One of th major US cancer organizations put together this review of mantle cell lymphoma. It is a good place to start: https://www.nccn.org/patients/guidelines/content/PDF/Mantle-patient-guideline.pdf

      • Michele.PatientPower

        40d

        @fl137 @fl137 Plus it's great that it's recent - from 2023! Thank you

    • avocad01997

      82d

      Stay organized with your medical information. Keeping a binder with all my test results, treatment plans, and doctor notes made managing appointments and treatments less stressful.

      • Michele.PatientPower

        64d

        @avocad01997 @avocad01997 This is terrific advice! How long have you been doing this?

    • Superman21

      83d

      take a deep breath. I know it's a lot to take in. My advice would be to find a specialist in mantle cell lymphoma if you haven't already. They can provide you with the most up-to-date treatments and advice. Don't hesitate to ask your doctor about everything, even the small stuff. No question is too minor when it comes to your health.

      • Michele.PatientPower

        64d

        @Superman21 @Superman21 The specialists are definitely the best way to proceed if you can get to one. Do you have to travel far to get to yours?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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"It's completely normal to feel scared and overwhelmed, especially after looking up information online. My advice would be to take a step back from Google and focus on your healthcare team. It's important to remember that not everything on Google is accurate or applicable to your case. Lean on friends, family, and this community for support. We're here for you and understand what you're going through. Just take things one day at a time and focus on the treatments ahead. And ask your doctors lots of questions!"

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