High Lymphocyte Count and Possible Mantle Cell Lymphoma Diagnosis

I went in for my usual check-up, feeling fine, and then my blood test came back with a high lymphocyte count. my Doctore is checking for mantle cell lymphoma. I hadn't heard about it before that. It's all been a bit overwhelming. Do you have any advice on how to navigate this? What should I do next?

Your answer

CalamityLeslie

2mo ago

Under no circumstance google it . It will scare you terribly. Dont jump to conclusions until testing is done and the doctor tells you what it all means .Wishing you the best

Michele.PatientPower

2mo ago

@CalamityLeslie Great advice! So many of us forget that Google is not an MD!

fl137

3mo ago

One of th major US cancer organizations put together this review of mantle cell lymphoma. It is a good place to start: https://www.nccn.org/patients/guidelines/content/PDF/Mantle-patient-guideline.pdf

Michele.PatientPower

2mo ago

@fl137 Plus it's great that it's recent - from 2023! Thank you

avocad01997

3mo ago

Stay organized with your medical information. Keeping a binder with all my test results, treatment plans, and doctor notes made managing appointments and treatments less stressful.

Michele.PatientPower

3mo ago

@avocad01997 This is terrific advice! How long have you been doing this?

Superman21

3mo ago

take a deep breath. I know it's a lot to take in. My advice would be to find a specialist in mantle cell lymphoma if you haven't already. They can provide you with the most up-to-date treatments and advice. Don't hesitate to ask your doctor about everything, even the small stuff. No question is too minor when it comes to your health.

Michele.PatientPower

3mo ago

@Superman21 The specialists are definitely the best way to proceed if you can get to one. Do you have to travel far to get to yours?

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