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AshleyZouma

3mo ago

Concerns about Hereditary Risk of Multiple Myeloma

so my mom was diagnosed with Multiple Myeloma when she was 53. I'm getting close to that age myself and was wondering if there's any chance it could be hereditary. Do you know if it runs in families? And if it does, is there anything I can do to check if I'm at risk for it too?

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Michele.PatientPower

4w ago

Here's the link to the Promise Study: https://www.enroll.promisestudy.org
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Michele.PatientPower

4w ago

If you are worried there is a study with testing so you can learn if you have MM. It is happening right now for "People of Any Race Who Have a Parent, Sibling, or Child with: Multiple myeloma or another blood cancer." My next comment has the link to this.
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TC54

3mo ago

From what I have read it is generally not known what multiple myeloma is caused from, but that it is probably environmental. Even if it is and you do get it (doubtful in my opinion), just because your mother got it and had a rough time with it, doesn't mean you will. Medicine for multiple myeloma now is so much better now than 30 years ago, it isn't even comparable. I've had it for six years and have been in remission more than I've been in relapse. So if you get it you'll be fine, just get a doctor that specializes in MM. Right now I'm in remission and I play pickelball 3 times a week and walk the dog a mile every day. It's not MM that keeps me from doing anything, its my age . (I'm 69)
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_skyline_

3mo ago

Hey there! I'm sorry to hear about your mom's issue, and I totally understand how worried you must be. Just wanted to let you know that in case you're ever diagnosed with multiple myeloma, don't panic. There are some basic blood lab tests that can check for it pretty easily. Also, there's a precursor condition called MGUS that shows a few abnormal labs, but only 3% of people ever get multiple myeloma from it. If you have it, they'll just watch your labs every 6-12 months. The good news is that treatments are much better now than they were even 5 years ago. Stem cell transplants with your own cells can create remission in many with bone marrow cancer. And, it's very unlikely that multiple myeloma is hereditary. Stay safe out there!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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