Dealing with Hepatic Encephalopathy Diagnosis

sorry I haven't responded sooner! I still have compensated liver disease but I'm worried about it decomp-ing and what would cause it. I had a MELD of 17 at time of diagnosis in 2020. My MELD is now 6. Like you, I've struggled emotionally as well. I am not working or driving so the loss of my profession and freedom has taken a toll. I have an appointment Monday for neuropsych testing (finally!) How are your bile ducts? Are they still blocked? I've had no experience with that

Has anyone had liver decompensation after stabilizing? I currently have compensated liver disease after healing from acute liver and kidney failure but my doctor's have told me it's possible to decompensate if I started drinking again, didn't take meds, didn't follow diet, or for no reason at all. I'm wondering if this has happened to either of you? I'm scared of it happening to me.

Lactulose controls mine. There are other meds too. Xiafaxin?(sp) mine stays in a range And out of that range Is alarm. Sorry I don’t have current tests . My last were alarming and adjustments made. I wouldn’t also ask Drs about MELD score , which assigns a severity level and guides for ongoing care.

Yes, I had HE at the time of my liver disease diagnosis in Oct 2020. It was quite scary. Since that time I've been following all of my doctor's recommendations, including a very low sodium diet and absolutely no alcohol. My ammonia levels came down rather quickly, but my HE symptoms lasted much longer.