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ekko_inyoheart

762d

hello, I just recently got diagnosed with Hemiplegic migraines after dealing with a migraines for almost 3 months. My neurologist put me on a a preventive that gave me severe side effects and while I wait to see them about starting a new one; what do you guys recommend I do to help keep the migraines away or at least at bay? My stomach is rather shot from all the medicine I've had these past few months so I rather avoid medicine if I can.

Top reply
    • chronicallyfab

      748d

      @ekko_inyoheart if your doctor diagnoses you with hemiplegic migraines your insurance should cover Nurtec as it is the only medicine on the market that can treat hemiplegic migraines. Triptains are proven to cause medical risk to those with hemiplegic migraines as it increases the chance of stroke, your doctor can sign an exemption waiver with your insurance to get it approved. I’m so sorry you’re dealing with this.

    • katzgoddessa

      756d

      So what did the neurologist say?

      • ekko_inyoheart

        754d

        @katzgoddessa she took me off the medicine and put me on it's sister medicine which has no side effects other than drowsiness. She has also prescribed me steroids to take as things there was inflammation that was causing the migraines. I just took my last dose today and it finally went away for the most part. She gave me an extra prescription just in case

        • ekko_inyoheart

          754d

          @ekko_inyoheart She thinks*

    • chronicallyfab

      757d

      Make sure you aren’t on any Triptans, those can make the symptoms of hemiplegic migraines worse. I take Nurtec and Tizanidine for mine and it helps but of course doesn’t relieve all of the pain. I also take a high dose of vitamin C and regular doses of magnesium and glucosamine Chondroitin daily. People previously mentioned foods to avoid, this has been true for me as well. Avoiding nitrates, artificial sugars and dairy have been helpful - try an elimination diet and keep a journal to find out what (if any) is a trigger for you! So sorry you’re dealing with this ❤️

      • ekko_inyoheart

        754d

        @chronicallyfab my insurance is making me fail triptans in order for them to even consider Nurtec so for now I'm stuck taking them and the samples my neurologist gives me

        • chronicallyfab

          748d

          @ekko_inyoheart if your doctor diagnoses you with hemiplegic migraines your insurance should cover Nurtec as it is the only medicine on the market that can treat hemiplegic migraines. Triptains are proven to cause medical risk to those with hemiplegic migraines as it increases the chance of stroke, your doctor can sign an exemption waiver with your insurance to get it approved. I’m so sorry you’re dealing with this.

    • katzgoddessa

      761d

      Yep, we are never alone in this fight. I'm trying to get through a week without everyday being a migraine day. A daily fight. It seemed to all start after my hysterectomy. Which sucked too.

      • ekko_inyoheart

        761d

        @katzgoddessa that's my struggle too. My first preventative medicine got rid of them but since I've been off it I have been trying to get one and today it finally struck. Hopefully the medicine they prescribe tomorrow will get rid of it. I'm so tired of feeling horrible everyday all day.

    • atla_kk

      762d

      Hi! I'm new to the app but I've had migranes for as long as I can remember and hemiplegic migranes for 7 yrs. I've gone through so many treatments and have found what doesn't and does work, which really depends on the person. Vitamins B12 and magnesium mentioned previously are good. I also have been told to avoid foods with MSG, nitrates and sulfates. Regular sleep, plenty of water and exercise help to. These have allowed me to take a very minimal dose of preventative medication every night. In all honesty though it's about learning your triggers and how to avoid them. Best of luck to you, I know they can be not so fun but you've got this😊

      • ekko_inyoheart

        761d

        @atla_kk thank you so much. When I got my first attack I thought I was going to die. It was so scary. I'm going to my neurologist again tomorrow due to having a severe reaction to my preventative medicine and I'm going to ask about checking to see if I need to take vitamins. Unfortunately I developed a migraine right after I got off the medicine so I haven't had the best couple of days. It's so nice to see I'm not alone in this

    • katzgoddessa

      762d

      Magnesium Glucinate, B2, Co Q-10, are the three my neurologist put me on. I also use meditation, quiet time, dimmer lights at times and essential oils in a defused and the lavender sprays on my bed pillow and covers each day. Don't know if the oils are helping but I am sleeping better which helps. Having hemiplegic migraine suck cause you spend hours in ER getting poked, prodded, and Cat scans. I try to not go but it's scary cause that hits first then comes the headache, usually after you leave ER. I just can't figure out what is triggering them. Each day is a different trigger. Thankfully, knock on wood, the hemiplegic aura has hit for over a year. Now when I get nauseous I know ones coming.

      • ekko_inyoheart

        761d

        @katzgoddessa I get nauseous as well and get severe vertigo spells. My muscles also like to tense up. Do you have any tricks to help take the pressure off?

    • Julysky

      762d

      Hello. I’m on a similar boat. Have you taken any blood work to see if you are deficient in any vitamins ? I did, and found I was lacking vitamin b12, magnesium and d3. Once started I taking these everyday, it helped

      • ekko_inyoheart

        762d

        @Julysky I take vitamin c already but I will ask the doctor about getting blood work done. Thank you so much for suggesting that

        • Julysky

          762d

          @ekko_inyoheart No problem! I should’ve also mentioned that those 3 vitamins are beneficial for people that suffer from migraines, and that’s why it was significant when my blood test showed I was lacking them. Hope you find some comfort!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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