Dealing with Hemiplegic Migraines: Seeking Advice

So what did the neurologist say?

Make sure you aren’t on any Triptans, those can make the symptoms of hemiplegic migraines worse. I take Nurtec and Tizanidine for mine and it helps but of course doesn’t relieve all of the pain. I also take a high dose of vitamin C and regular doses of magnesium and glucosamine Chondroitin daily. People previously mentioned foods to avoid, this has been true for me as well. Avoiding nitrates, artificial sugars and dairy have been helpful - try an elimination diet and keep a journal to find out what (if any) is a trigger for you! So sorry you’re dealing with this ❤️

Yep, we are never alone in this fight. I'm trying to get through a week without everyday being a migraine day. A daily fight. It seemed to all start after my hysterectomy. Which sucked too.

Hi! I'm new to the app but I've had migranes for as long as I can remember and hemiplegic migranes for 7 yrs. I've gone through so many treatments and have found what doesn't and does work, which really depends on the person. Vitamins B12 and magnesium mentioned previously are good. I also have been told to avoid foods with MSG, nitrates and sulfates. Regular sleep, plenty of water and exercise help to. These have allowed me to take a very minimal dose of preventative medication every night. In all honesty though it's about learning your triggers and how to avoid them. Best of luck to you, I know they can be not so fun but you've got this😊

Magnesium Glucinate, B2, Co Q-10, are the three my neurologist put me on. I also use meditation, quiet time, dimmer lights at times and essential oils in a defused and the lavender sprays on my bed pillow and covers each day. Don't know if the oils are helping but I am sleeping better which helps. Having hemiplegic migraine suck cause you spend hours in ER getting poked, prodded, and Cat scans. I try to not go but it's scary cause that hits first then comes the headache, usually after you leave ER. I just can't figure out what is triggering them. Each day is a different trigger. Thankfully, knock on wood, the hemiplegic aura has hit for over a year. Now when I get nauseous I know ones coming.

Hello. I’m on a similar boat. Have you taken any blood work to see if you are deficient in any vitamins ? I did, and found I was lacking vitamin b12, magnesium and d3. Once started I taking these everyday, it helped