Hello fellow potsies! I was wondering how many of you ha...

I have POTS and mild gastroparesis, I also have post prandial pain unrelated to the GP (can't figure out the cause of it yet), but bc of that it is very hard for me to eat aswell. I weighed 100lb at one point, my doctor told me that if I lost more weight we would talk about getting a feeding tube. The closest experience I have to that is I got a manometry test done, it was torture. The worst feeling ever. But I understand your pain/feelings, I often thought a tube would be easier. I found that drinking boost shakes and eating soft foods helped in the beginning. I've now gained 12lb and can eat regular foods. I still have the pain but I've just been "dealing" with it bc even with the 12lb I feel so much stronger than I did before. So, I say all that to say that a feeding tube is not a failure, but it should be the last resort. You're not alone. Talk to your doctor and see what options are available for you. I hope you get some relief and are able to eat soon ❤️

I am a potsie, but I got my feeding tubes for Gastroparesis. I was labeled as pale and frail while in the hospital for a partial paralysis episode, and was struggling to eat even the smallest meals. I had failed all of the Gastroparesis medication treatments. I could barely eat a snack.