Difficulty in getting a HEDS/EDS diagnosis

I got diagnosed with Eds and pots at 16 (2 years ago), but had been having random dislocations for years before that. Doctors suck about rarer diseases

I was unofficially diagnosed by a PT many years ago but wasn't able to get officially diagnosed until I had health insurance in 2021. It was pretty easy for me but I was near a geneticist in Boston. So proximity also matters

I got diagnosed with POTS first. Started talking to my PCP about eds and he sent me to a genetic specialist, who wouldn't take me because they are only taking cancer patients. Got a new PCP who happens to have EDS. He listened to all my symptoms and agreed I have it-most likely hEDS he put it in my problem list as "hypermoble likely due to EDS" So it was fairly easy for me to get unofficially diagnosed, but no clue how to get officially diagnosed and not sure if it's even be helpful at this time

It took me like 10 years to figure out what was wrong, but getting the diagnosis was easy because I had been testing for everything else and it was all coming up negative. I went “do you think it’s EDS?” to my doctor and now I’m diagnosed with it, I think that the years of failing to find something helped the process though