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764d
How do you manage heat intolerance and near-syncope?
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Postural Orthostatic Tachycardia Syndrome (POTS)
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760d
Wet washcloth/towel break, extra water, extra salt (I salt my water), juice pops (popsicles), nylon/moisture-wicking fabric, low intensity activity, no reaching out or above my head.
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762d
I just ordered the Embr wave 2 with a free five day trial from nok. I really struggle with controlling my body temperature and hope this works.
Hi! I just learned finally that I have a form of POTS Syndrome called Mast Cell Dysautonomia. I recently found a wristband that looks like a watch called Embr Wave 2. It controls your temperature. It keeps you cool when hot and warm when cold. They cost about $250.00-$350.00. I read that they work. The new ones come in a rose gold or black. I have looked on Ebay and I have found a few that are brand new still unopened in the box. They also have the earlier version of them which are square. I would think the newer is better. I think the lowest price was still a little over $100.00 used. They make a ring too but not sure it’s as affective. I want to get one but I have not been able to work since January with all these symptoms I am dealing with! I have had my EBV active for one full year this month and I had already had a few of the POTS symptoms prior when it was dormant but I just kept developing more and more symptoms one from every organ ! This has triggered my chronic PTSD so luckily I have found a great trauma therapist who I amazing. I am just now learning coping skills after being diagnosed in 2018. I am wondering if you can answer this question. I have the tilt table text next week but I know this form of PoTS can make you have blurry vision but I have been seeing double prior for years bc I have a damaged optic nerve and I don’t have glaucoma. Do you know if this form of POTS can damage your nerves? I also have these vascular tumors in my spine mostly in my low back scattered and one in my mid back and my lower back hurts really bad now. I do have 4 bulging disc there too but I wanted to know if it could also cause those vascular tumors?? Thank you for your help and I pray you find some cooking comfort. I need it too! Google Embr Wave or temperature controlling devises. Thanks ! 🙏 to you!!
I use the cooling towels from athletic department to help in warmer climates
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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