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Jenny7777

802d

Hello my name is Jenny and I was born with a congenital heart condition. After many surgeries including two open heart my Fontan is failing and I am trying to get on the list for a heart and liver transplant. I was wondering if anyone else on here has gone through this because it’s extremely hard to deal with. I would like to develop a friendship with people who know what I am going through. It doesn’t have to be all about the transplants if anyone out there has Transposition of the greater vessel, Afib, Fatty liver disease or CHF. I have been through it all and I’m only 41. Feel free to reach out and let’s start a conversation with someone who actually understands what you have been or are going through. Hopefully I will hear from you soon. Jenny

Top reply
    • Micah

      792d

      With fatty liver, it’s imperative you lose weight or you can develop liver cirrhosis like md. I’ve never been a drinker either. I’m on Ursodiol, Propanolol, and Resveratrol for my liver. Also, your A1C must stay under 6 or it will make your liver worse. No drinking, smoking, or Tylenol.

    • Micah

      792d

      With fatty liver, it’s imperative you lose weight or you can develop liver cirrhosis like md. I’ve never been a drinker either. I’m on Ursodiol, Propanolol, and Resveratrol for my liver. Also, your A1C must stay under 6 or it will make your liver worse. No drinking, smoking, or Tylenol.

    • Jenny7777

      797d

      I’m so sorry I haven’t written back yet it’s been Crazy couple days for me. Captainofthevessels first of all welcome and it’s very nice to meet you, second of all I absolutely love your name. I can’t even imagine being away for surgery. I’ve had two open-heart surgeries and I have to get a liver and heart transplant soon but I also have to get on the list first. I was awake during a catheterization of mine and that was absolutely horrible I can’t even imagine what you went through. You’re so young I had my second surgery by the time I was your age, were you born with this or is it something that developed over the years? We are both here for you and it’s really nice to be able to talk to people that have gone through the same or similar situation so you don’t feel so alone as we do an every day life. Tell us more about you what do you like to do, where do you live, whatever you feel comfortable so we can get to know you better. I’m 41 I live in St. Petersburg Florida I’m an exbartender just because I can’t work right now and I miss my line of work so much because I’ve been doing it since I was 19 years old. I grew up in New Jersey my hometown is where they shot Jersey shore so I can open a very party environment that’s why I was so good at bartending lol. How is everything with you today? They have everything controlled through medication or do you need more surgery? Again I’m an open book so if I’m getting way too personal please feel free to let me know I’m very easy-going person and I completely understand. As for Tim how are you feeling my love? I know you felt under the weather the past couple days I hope everything‘s better. And anything new in exciting in your world? I love this app I love you able to talk to people that understand “being sick”. People think they know but unfortunately they have no freaking idea what we go through. Feel free to contact me or talk to us whatever you feel you need someone to talk to you. I’ve been lazy all day I have to start repairing dinner get my butt off at couch and clean up the house a little bit lol my boyfriends at work he’s also a bartender so he works late so I got time. I hope you guys day was great and I can’t wait to talk to you more have a great night 🤘🏼

    • stargazer2540

      798d

      ❤️❤️ ty Capt appreciate that

    • Captofthevessel

      798d

      I’m still here for a reason. That’s all that counts & so are you two. ♥️♥️♥️

    • stargazer2540

      799d

      😥😥💕 that had to be extremely scary and nerve-wracking to be awake! One little slip and no more you.

    • Captofthevessel

      799d

      I have CHF & type 1 too, as well as a congenital heart disease, but am not sure the name of it. & I’m only 28. I’ve had 4 heart surgeries. My most recent one, I was awake the whole time. It was awful.

    • stargazer2540

      802d

      ❤️❤️❤️ I suffer from chf and I have diabetes type 1 which doesn't help the situation..I e had chf for like 4 years,and I get very congested at times..I was on oxygen,but no longer..but some days it's hard to breathe.youre going through alot!! My name is Tim and only 51,and overweight...I will try to help you,but I don't have all the right answers..😀 I can just let you know what I'm going through,and maybe we can help each other out.🙏🙏 I like this app,but if you need to talk,please direct message me..I got 10 notifications on the same post I just interacted with,and I went back and looked,some notifications were not available.🙌🙌 Hope this is an air hug to you..hope it's not stop lol.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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