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Raven_Wine

438d

I experience almost all the symptoms of this condition I have fallen unconscious 3 times and I had a episode where I was sitting and not moving and my heart rate spiked to 160 and I get so dizzy just standing, walking, going up the stairs. Chronic nausea, my heart skips a beat, purple discoloration. I want to know from people who have this if I would fit the criteria.

Top reply
    • deer_by_the_water

      90d

      I have quite a few of these symptoms but I have IST

    • deer_by_the_water

      90d

      I have quite a few of these symptoms but I have IST

    • Magpie42

      438d

      Sounds like POTS from your description. Start keeping a log of your heart rate, symptoms, what you've eaten/had to drink. A few questions, does your bp run lower than normal? Have you done the "poor man's" tilt table test? I'll include a link. Does your heart rate spike when going from laying to sitting, sitting to standing? (This is why I suggest the tilt test) Some right now things you can do. Start drinking more water and increase your salt intake. It is the first line of treatment for POTS. If you don't care for salty food, you can do electrolyte packets in water, LMNT is my favorite but you can also do liquid IV, drip drop, banana bag, etc. Also, I know that it is hard and scary but try to start being upright as much as you can. Start SMALL. Like, stand up (slowly) and walk a lap around your house once an hour. If you need to use the wall for support, that's fine. You will feel better once you get a bit more conditioned to being upright. Last, if you are feeling really horrible, there are IV infusion offices in most major cities. You can go in for saline or lactated ringers as a way to get you hydrated more quickly. If you are having GI, Neuro, or any other symptoms, you might want to read about dysautonomia. It's POTS plus other symptoms. I have hypermobile Ehlers-Danlos which originally started out as a POTS/Dysautonomia dx. My doc and I started putting pieces together to figure out what was going on with me. My dms are open for POTS questions!

      • Raven_Wine

        438d

        @Magpie42 I have not done tilt table test and everyday at school I do my heart rate and blood pressure standing and sitting my blood pressure always drops and my heart rate spike up to 135-140 when I stand

        • Magpie42

          437d

          @Raven_Wine yep, sounds like POTS. Like I said above, increase your fluid intake (caffenated beverages don't count), and electrolytes/salt. I do about 1/3 of my water intake with electrolytes. The science behind this is by drinking more water, you increase your blood volume. Then you add in electrolytes to help the water stay in your body. This helps your blood stay circulating properly, rather than pooling in your lower extremeties. Compression garments work too. Some people find the tall running socks helpful but I prefer torso compression as it kind of keeps the blood moving better to my heart. You can even buy tights that go all the way up under your chest, I wore maternity compression leggings when I worked on my feet all day.

    • Hamie

      438d

      Definitely sounds like POTS. I feel like this alot

    • Healforhealth

      438d

      I suffer from most of the symptoms you have mentioned. It does sound like you have a lot of common POTS symptoms. Does your heart rate remain high even when sitting down? My heart rate runs high most of the time, but when I stand or exert myself in any way, there is a big jump in my heart rate. Have you been evaluated by a physician yet?

      • Raven_Wine

        438d

        @Healforhealth I did a ekg and they said i was fine since it was normal

        • Healforhealth

          430d

          @Raven_Wine Oh my gosh, I have had an extensive cardiologic workup done and every test comes back normal. It is so frustrating trying to get a diagnosis. The golden standard test is a tilt table test performed by an electrophysiologist. After you receive a diagnosis, you have to figure out which subset of pots you have. For me specifically, I have Hyper pots, short for hyperadrinergic. My body dumps way to much adrenaline into my bloodstream. Unlike Hypovolimic Pots, I don't suffer from low blood volume or low blood pressure. Increasing my salt intake or my fluid intake does not help my symptoms. My blood pressure runs high most of the time, and my heart rate at rest is high as well. Pots can be secondary to other health issues too. For example a severe B1 deficiency can mimic pots. At the beginning of my pot's Journey, I was seeing a functional doctor that checked as many nutritional deficiencies as she could. To my surprise I had quite a few. Correcting these vitamin deficiencies really relieved the severity of a lot of my symptoms. This second thing we worked on was healing my gut. Getting rid of things like candida and SIBO, and adding a high quality probiotic can also help you begin to start feeling better. There are so many things along the way that you can do to help yourself. Please message me any time if you have any questions or even if you're just feeling overwhelmed. I will always answer. I hope this helped and I hope that you get some much needed relief. 🙏❤️

    • MelodyDarling

      438d

      Sounds like a lot of the symptoms I have, but I'm not a medical professional and the best thing is to talk to a professional.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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