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Engie

2y ago

Struggling with Hashimoto's: Seeking Advice and Support

Hi I’m new here. I have Hashimoto's disease. I was told that removing my thyroid would fix all my problems. It didn’t. Worse yet, 4 years later and I am still testing positive for Hashimoto's disease and have seen NO improvement in symptoms. Please share your thoughts or experiences. (I also was more recently diagnosed with MCTD).

Your answer

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tia74

2y ago

i had a partial thyroidectomy in may...im struggling with bad symptoms...but a lot of it has to do with my diet...
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Lora

2y ago

Are you taking Levothyroxine? It took some time for me but eventually I found the right dosage that keeps my symptoms balanced and my TSH level low.
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Mila

2y ago

There is no cure for Hashimoto's, the antibodies will stay positive probably to the rest of your life. But replacing hormones with medication can regulate hormone levels and restore your normal metabolism, maybe you need to increase the dosage that you take?
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lily234

2y ago

So interesting. From my understanding, hashimotos is an autoimmune disease which means the body attacks itself. In our case with hashimotos, the body is attacking our thyroids which create an essential hormone. For other autoimmunity diseases like Crohn's which attacks the bowel, patients remove destroyed portions and take immunosuppressants. But immunosuppressants kinda suck and make you more likely to get sick more often so instead we kinda just let the thyroid be destroyed and replace the hormone it should be creating since we only really need the thyroid for it's hormones, not for it's structure (relating to the Crohn's example, we need the structure of our intestines). So basically, yeah we don't need the destroyed thyroid, but I'm not sure why removing it would make any sense as a fix.
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Engie

2y ago

@aru I wanted to get a 2nd opinion, but I didn’t have that as an option. I wish I didn’t have it removed because now I have to take fake thyroid meds to stay alive.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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