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JuliusSeizure

9mo ago

Had a Seizure After Switching Medication, Need Advice

CRAP. I just had a freaking seizure. For the first time in about a year. They switched me from Trileptal to Vimpat after my seizure last year. The Vimpat seemed to be working pretty well until today. But then as I was walking home from church, I started having an aura—the flashing light. I haven’t had that type of aura in a while. So I sat down at the nearest bus stop, and the light kept getting worse. So I used my SeizAlarm app to page my mom and stepsister, then called 911. By this time, I’d lost most of my bodily control but was still fully conscious. When 911 picked up, all I could say was just yell “I’M HAVING A SEIZURE I’M HAVING A SEIZURE I’M HAVING A SEIZURE!!!” I couldn’t say my name or address or anything. Within what felt like two minutes, the ambulance was right there. One of the great benefits of living in an urban area. By the time I was in the back of the ambulance, I was calming down and phasing out of the seizure. I never lost consciousness, so I guess it was a complex-partial seizure. So they drew my blood or gave me some sort of shot. As they were about to shut the door and take me to the ER, I just said, “Wait, I’m okay now. I don’t need to go to the hospital.” After they asked, “Are you positive” about three times, my mom was there. “Is this your mom?” “Yes.” “He’s fine, thanks for getting him. But he can come with me.” So I had to sign a waiver, and they let me go with my mom. Anyway, I’m at my mom’s house now just relaxing. My grandma came with her too. My family is great. ❤️ So I’m going to stay here overnight, and my mom will take me to work in the morning. I’ll probably take the bus home from work. But no more driving for six months I guess. 😣 Anyway…now I’ve got to get another appointment with my epileptologist. Hopefully he’ll be able to figure out what caused it. The guy in the ambulance said it’s probably because I’d “developed a tolerance for the Vimpat.” I’m not sure if that’s a thing, but the epileptologist will know. I’m sick of switching meds though. One thing I think may have happened if I had to guess. Stress tends to trigger seizures for me. I just got back from a week long vacation with my mom and stepdad. This is the longest I spent with them—or anyone—for that long in…years I think. So when I got home last night, it was pretty early, but I crashed in bed from social exhaustion. Then of course I got up and went to church followed by a picnic. More socialization! So yeah. I’m thinking that may have been at least part of the cause/trigger. Or maybe the doctor/nurse on the ambulance was right—perhaps I’ve just developed a tolerance to the meds. I’ve never heard of that though.

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