BoomerangValentine

479d

I just wanted to share a small celebration :) I had an incredible appointment this week at a big research hospital out of state. They assigned me a team of five doctors who are experts in the field, and they are really committed to helping me feel better. They were all so kind and compassionate. I finally feel like I might be able to make some progress with my health after so many years of decline For everyone reading this, I hope good doctors and symptom relief are coming your way 💕

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Top reply
    • jayhuff

      471d

      @BoomerangValentine I would love to hear an update on the general advice they give and on the things that have worked for you!

    • LadyAshley

      479d

      ❤️

    • heyvp

      479d

      I love this! Having a team that listens, validates, and genuinely wants to help makes all the difference. Do you mind sharing what research hopsital?

    • LovelyNova

      477d

      This is amazing ❣️ so happy and excited for you! I am hoping you find the treatment/management you need to live a better quality of life. Keep us all posted with your progress 🙏

    • AnnetteMarie

      476d

      Can u tell me where this hospital is located?

    • Mj_and_Otis

      476d

      What hospital? I haven’t found any good docs for EDS and stuff.

    • BoomerangValentine

      476d

      Johns Hopkins! The hospital seems to have a lot of EDS resources :)

      • jayhuff

        471d

        @BoomerangValentine I would love to hear an update on the general advice they give and on the things that have worked for you!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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