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GeoStorm

709d

How do I get my doctors to take my pain more seriously? I've tried journaling and doing my own research but I kinda always get shot down and told to just take the same vitamins I've been taking for 3 years.

Top reply
    • EDSandco

      702d

      Bluntly find better doctors. 9/10 times it isn't you it's that they have compassion fatigue, don't care, are jaded, or think you're dramatic. If finding other doctors isn't an option I would be very blunt about not feeling listened to and that my pain isn't under control. EDS pain is poorly understood by soooooooo many people in medicine and unfortunately if they aren't keeping up with research and/or seeing multiple EDS patients then they aren't likely to change.

    • EDSandco

      702d

      Bluntly find better doctors. 9/10 times it isn't you it's that they have compassion fatigue, don't care, are jaded, or think you're dramatic. If finding other doctors isn't an option I would be very blunt about not feeling listened to and that my pain isn't under control. EDS pain is poorly understood by soooooooo many people in medicine and unfortunately if they aren't keeping up with research and/or seeing multiple EDS patients then they aren't likely to change.

    • coolsciencechic

      706d

      Find a new doctor.

    • LeeannD

      708d

      Honestly probably not the beta answer, but if possible, I'd find a new doctor. If you're journaling and trying your best to convey your situation, you might just not have someone that's the best fit for you. Sorry I know not the answer you asked for. Took me YEARS to find someone who fit me well

      • QueenSmurf

        707d

        @LeeannD I completely agree with this! So many doctors are starting to realize the massive amount of pain people with EDS can experience. I was diagnosed with EDS when I was 29 after years of not being taken seriously. The geneticists referred me to pain management and I am so thankful for that doctor! He takes me seriously, doesn't treat me like a drug addict, and does his best to control my pain. He has given me so much of my life back. I would request a referral to pain management and if they say no, definitely consider changing doctors.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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