Stories
Privacy
Download
See Alike in...
Alike App
Browser
58d
Is there a genetic testing for MM? thank you for your answers!
0
5
Share
Acute osteopenia
Dexamethasone
Elotuzumab
Multiple Myeloma (MM)
Loss of weight
Gastritis, Duodenitis (Not Infectious)
Generalized pain
Disturbances of sensation of smell and taste
Anorexia
Morphine
Lenalidomide
advertisement
25d
Thanks for sharing your story.I must say you're incredibly strong on the inside for reaching out for support. I went through this stage and I know exactly how it feels like.Everyone’s body has a specific way of reacting to MM, I can’t really tell how your body will respond but I can tell you how mine went and prolly this might help you. I was diagnosed in September 2019 and I started chemo shortly after. I was put on Elotuzumab , lenalidomide, and dexamethasone over a period of 4 weeks cycle which was repeated. I did 6 cycles over a period of 6months. I finished in this plan in 2020 and I have complete remission. I then had 15 days of radiotherapy in my right pelvis which ended in October. In late November I was admitted to the hospital for radiation colitis, part of my descending colon was resectioned. I lost my appetite, my taste changed and I lost weight. I did mostly soups and drinks recommended by my medical team. I think now my weight is beginning to stabilize. I didn’t get any infections because I made sure I kept good hygiene.I was on oral and slow-release morphine for the pains. I also received infusions to strengthen my bones every 4 weeks which will run for another year, but I still feel weak most of the time. I was only able to exercise for a few minutes at a time in a day. I won’t be going in for a stem cell transplant , I don’t think I’ll need it at this time since I am currently in complete remission. I hope this helps, please feel free to ask me anything.
I think there’s no definite answer on this for sure. In my case, I did follow-ups and constant monitoring with my doctor. I also tied it up with lifestyle changes..and I have not been knocked out of remission for the past 4 years. Talk to your doctor and see how he goes. cheers !
31d
I've heard of a useful genetic test that can help identify abnormalities in your chromosomes. It is called FISH test and can really help with prognostic implications and treatment decisions. Additionally, there are other tests which are not genetic but equally useful. One such test called IFX is quite sensitive and can tell if there are any signs of monoclonal protein in your blood. And if the results are clear of monoclonal protein, then there's a 98% chance that you don't have multiple myeloma. Let me know if this helps!
I don't think everyone needs to do this testing, I didn't or at least I'm not aware of its results, I'd recommend discussing it with your doctor to see if it's appropriate for you.
Hey there! yeah, there are genetic tests available for mm that can help identify genetic mutations or abnormalities. they sometimes help with determining the prognosis and treatment options. Hope this helps! 💡
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
The provided content does not contain information about genetic testing for MM.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions