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Watercolor_Diva

799d

I was wondering, how many of you have done the genetic testing? I sent in my DNA sample about three weeks ago and I am awaiting results. I have been diagnosed with hEDS. I think my genetic counselor wants to make sure she isn’t missing anything.

Top reply
    • Kat_A

      796d

      I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types

    • Kat_A

      796d

      I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types

    • AraS

      798d

      I hope your geneticist realizes that hEDS isn’t diagnosable via DNA testing…

    • AraS

      798d

      I have - 3 times. Suuuuuper helpful.

    • Berta

      799d

      My kids did they did not have anything else just the heds

    • Kat_A

      799d

      Me but the results weren't enough so I'm getting more... currently diagnosed with hEDS

    • Phoenixwingfeather

      799d

      I did but they didn’t find much, I test low on their testing scale of hEDS but I have it strong enough to be a major pain in my ass and all my joints 😁

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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