Genetic Testing for hEDS

I was wondering, how many of you have done the genetic testing? I sent in my DNA sample about three weeks ago and I am awaiting results. I have been diagnosed with hEDS. I think my genetic counselor wants to make sure she isn’t missing anything.

Your answer

Kat_A

2y ago

I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types

AraS

2y ago

I hope your geneticist realizes that hEDS isn’t diagnosable via DNA testing…

AraS

2y ago

I have - 3 times. Suuuuuper helpful.

Berta

2y ago

My kids did they did not have anything else just the heds

Kat_A

2y ago

Me but the results weren't enough so I'm getting more... currently diagnosed with hEDS

Phoenixwingfeather

2y ago

I did but they didn’t find much, I test low on their testing scale of hEDS but I have it strong enough to be a major pain in my ass and all my joints 😁

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