Struggling with Genetic Testing for hEDS

My doctor doesn't want to do genetic testing for my hEDS, does anyone else have a similar experience?

Your answer

Entropyluna

1y ago

They don't know what the genetic markers are for the hypermobile subset of EDS, so there's a good reason that your doctor wouldn't send you for genetic testing if that's the only condition that's being considered. It might be done to rule out other conditions, but it can't prove that you have hEDS.

GreytDood

1y ago

That makes more sense! Thank you! He was just kind of like, "nah we aren't doing it"

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