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Sadako

832d

Has anyone had genetic testing to help diagnose or treat your epilepsy? I've been undiagnosed for five years with seizures and assumed pseudo because I don't lose control of bodily functions. though I do vomit. And hormonal changes can be a trigger.Does getting tested help and do I have specifically go through a referral process? My two neurologists have bad communication I don't feel I'm going anywhere and Emory appointments are far and few between and with the epidemic it's much harder to get testing and treatments.

    • Sadako

      832d

      It's in Atlanta. I'm tired of being dismissed as pseudo constantly I have PTSD but it can't account the fact I always have my worst seizures/migraines during pms or beginning of periods. Everyone is complacent and ignore the obvious pattern. I haven't even had a MRI since I was 17 when migraines were the only problem. I psychically cannot force myself to vomit for that even the whole contents of my stomach unless I actually have digestional issues. Its always agonizingly slow because of my symptoms with migraines, and vomiting so many years. I don't know what symptoms they need to actually care about a proper diagnosis. They never take me off medication with EEG and expect a new result.

    • Florina

      832d

      If you’re with Emory (I’m assuming the one in Atlanta or the brain and spine one?) I used to go there! My neuro was Dr. Dickey! It ended up getting to be a little too far (30 mins - an hour depending on our horrid traffic) but that’s where I had my first neuro team!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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