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Jillfp511

787d

I was diagnosed with gastroparesis when i was 16 in 2017. since then i’ve started medication. My nausea will not go away, I’m in constant pain, and nothing will help. My doctor wanted to see if i was having issues with my gallbladder, but it was fine. I’m kinda at a loss 😅 I just want to feel better because i just started college.

Top reply
    • Food_Fighter

      775d

      @Jillfp511 So Glad. And You Can Do Self massage of Vagus Nerve. Search Internet. Also. I Find That Long Hot Baths or Showers help …Try Stomach massageMassage 🙌

    • HotMess426210

      777d

      I struggled with severe gastroparesis and would often be admitted to hospital for TPN. Eventually I had to get a feeding tube that sends food/formula straight to the small intestine bypassing the stomach completely. Best nausea meds I’ve tried are phenergan, zofran, and Benadryl. There is also the option of a gastric pacemaker but that’s typically a last resort. Mestinon is also another medication that can help with dysmotility

    • BumbleBees

      777d

      I take zofran and wear sea bands! It seems to work for me pretty well but I am considering switching to phenagran because zofran makes you so constipated! I’m working up the courage to ask for a feeding tube or the gastric pacemaker because of how bad my symptoms are getting though

    • elo2002

      780d

      I do zofran plus half of clonazepam. I also wear the sea bands bracelets.

      • Jillfp511

        779d

        @elo2002 i love seabands !

    • Food_Fighter

      780d

      I Am Really old And Really Resourceful..With A Granddaughter Who Just Completed College. I Strongly Suggest Chinese and or Functional Medicine..I Am In NYC where I shave Many options..Talk To Your Parents To See What They Think Also Does The College Have A Good Health Department in Place. Research the Part the Vagus nerve plays in Gastroparesis. Share Everything With Your Parents. So They Can Help You Make A Plan.

      • Jillfp511

        779d

        @Food_Fighter i’m getting in touch with my doctor about the vagus nerve ! thanks!

        • Food_Fighter

          775d

          @Jillfp511 So Glad. And You Can Do Self massage of Vagus Nerve. Search Internet. Also. I Find That Long Hot Baths or Showers help …Try Stomach massageMassage 🙌

    • RockerChicken

      786d

      I’ve had Gastroparesis for a while now and phenergan has been the best to help me. As well as Gas X the cherry flavor there is something about them that just helps SO much. Also, ginger tea or ginger pops help ease nausea. I can sometimes get a bit of ginger ale the bubbles get gas out but too much it will push you over the edge and make you throw up. When is your worst time of the day? Mine use to be first thing in the morning now it’s 8P-10P hot things seem to help at night where as morning colder. Heating pads are amazing as well! I have 2 big ones one for home one for work. Every single time I eat I put the heating pad on my stomach it seems to helps a little. Watch your greens, gluten, as well as dairy they are the ones that will get you the most. Ultimately, just know sometimes surgery is the only way to help and that’s ok you have done nothing wrong our bodies just can’t take our remedies anymore and need a push. Good luck ❤️

      • RockerChicken

        786d

        @RockerChicken Also, drink as much as you can. And don’t I know how hard that is!! I have to get IVs fairly often because of all of the throwing up making me dehydrated and that can make you hurt all over when you are so see if that is something your doctor could do for you monthly or weekly even. ❤️

        • Jillfp511

          785d

          @RockerChicken tysm! I got fluids yesterday thankfully 😅 my worst time of day is the morning, 5-9 am is terrible.

    • BoomerangValentine

      787d

      I second phenergan and ginger! I can’t take zofran because I have colonic dysmotility, but phenergan has been really helpful

      • Jillfp511

        787d

        @BoomerangValentine My Dr prescribed it for me, but only as a suppository, which i’m against 😅

    • JulietteMayaNima

      787d

      This Surgery Was October 2009! Okay

    • JulietteMayaNima

      787d

      I Was In A Lot Of Pain And My Pain Doctor Said I Need A Surgery And It Wouldn’t Help And He Cut Me Open Deeply From My Nerve To My Sternum Bone And I’m Still Not Feeling Well

      • Jillfp511

        787d

        @JulietteMayaNima What was the surgery called ?

    • Olivia626

      787d

      If the zofran isn’t helping you or giving you pain or constipation try to switch to phenergan it made such a difference. And yes, there are other minor surgeries that do not have risks are are non-invasive. If you haven’t already, check out Dr. Cline at the Cleveland Clinic. Worth the trip and he and is team literally saved my life. He is a true gastroparesis expert.

      • Food_Fighter

        775d

        @Olivia626 I am a great follower of Dr Cline…Did You Have Any Surgery

      • Jillfp511

        787d

        @Olivia626 i’ll definitely talk to my Dr about it. I see a gastroparesis doctor at Johns Hopkins so i’m very lucky to have him! And it may be time for surgery 😅 thank you!

    • Olivia626

      787d

      Hi! What were you prescribed for nausea. I found phenergan to work best along with ginger lollipops. Have you tried any surgeries?

      • Jillfp511

        787d

        @Olivia626 I’m on dissolvable Zofran. I’ve been trying to avoid surgery. I only know about the gastric pacemaker. Are there any other ones ?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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