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cjoite

801d

Hello everyone. After being sick for two years I can add a new diagnosis for GI related issues. How many here with gastroparesis that actually have needed a feeding tube?

Top reply
    • BumbleBees

      783d

      @Shelle I take zofran and it helps enough. I also can’t eat more than 800 cal a day and it is a scary feeling isn’t it?? I dread the thought of doctors telling me I need a feeding tube! I’m at my minimum weight before doctors start worrying 😬

    • Shelle

      793d

      I can relate. I’m 53 and usually have a hard time losing weight. I’ve lost 30 pounds since October 2021 and I’m still losing. I fear a feeding tube. I’m considering surgical options to help. I’m on reglan now and it helps but I still can’t eat more than 800 calories a day.

      • BumbleBees

        783d

        @Shelle I take zofran and it helps enough. I also can’t eat more than 800 cal a day and it is a scary feeling isn’t it?? I dread the thought of doctors telling me I need a feeding tube! I’m at my minimum weight before doctors start worrying 😬

    • cjoite

      799d

      I have lost 55 pounds over the course of 2 years. I was diagnosed with celiac disease last year. I have faithfully followed a gluten-free diet. The most recent problem now is that I can’t eat. If I eat anything my stomach cramps and I throw up. It even cramps drinking liquids. This has progressively gotten worse over the past 6 months. In 2 weeks I will have another egd and colonoscopy. I have always been of small stature but now I cannot get my weight above 98 pounds.

      • BumbleBees

        799d

        @cjoite I know the feeling! I’m 5’2. I used to weigh 140-150. I got down to 100 in just 2 months and I haven’t managed to stay above 110 for years now :( I’m seeing a new doctor next month because I’m getting worse

        • cjoite

          791d

          @BumbleBees I wish you luck! Prayers 💕

    • BumbleBees

      799d

      I’ve been properly diagnosed for two years now! I haven’t needed one yet but I worry that it’s progressing to that point. I’m managing my diet to the best of my abilities to avoid getting one but it’s hard.

    • Sick_bunni

      799d

      I had mine for 2 years. It’s been out for about 3 or so years now and haven’t had to talk about getting another one 😊

    • Macemoments

      801d

      I will at some point. My stomach works at 40%. I eat what I want when I want. Small meals. Usually a meal a day with snacks. Then I still never know what sets the nausea off.

    • Bruin

      801d

      I’m getting close

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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