Stories
Privacy
Download
See Alike in...
Alike App
Browser
504d
Can anyone give me advice and personal experiences with gastroparesis? Recently diagnosed. I lost 50 pounds. I’m skin and bones. And just started meal replacements yesterday. I have no one to talk to and my doctors don’t know much about it.
0
13
Share
Gastroparesis
Prucalopride
Rabeprazole
Ondansetron
Nausea and Vomiting
Metoclopramide
Erythromycin
Dehydration
advertisement
503d
Hi there! I was recently diagnosed as well. I'm actually having the opposite problem, weight gain. I'm unsure why because I'm eating less than I used to due to pain and nausea. I do take rabeprazole twice daily, metoclopramide as needed, and ondansetron as needed. They do help a bit. However, medications help everyone in different ways. I hope that you find answers that work for you!
Yes I have a GI. And insurance doesn’t cover a dietician.
Try, eating smaller meals, medication, low fiber and fat, soft or liquid foods may be easier. If it doesn't stabilise then they will probably admitted you to try feeding tubs
@Teal100 I’ve been eating potato’s and applesauce for 6+ months. Started an organic meal replacement food yesterday. I’ve tried 2 medicines so far.
@xajhx23 I know you said you tried erythromycin (I was on that for just over 1 year until I had to stop taking it due to side effects but for me it was the most effective one). Other medications including donperidone, prucalopride and metaclopramide. Are you under gastro and a dietian? You may find you tolerate other food better if it is liquid fide.
The first step is to switch from large meals to frequent small meals throughout the day, avoid fiber and adapt a low fodmap diet (search online there are a bunch of lists). There are motility meds that you can try, although you should weigh the pros vs cons because they can have some really nasty side effects. If you are still symptomatic after lifestyle changes a J tube (NJ, GJ or J are all options) for enteral feeding is next. There are also things like Botox in the sphincter that goes from your stomach to your intestine, as well as a gastric pacemaker to stimulate digestion. Personally those things I am not doing/won’t do because I have heard they have a very low success rate, but they are still an option.
@Donkeyfarts I’ve been on reglan which didn’t do a thing. Then erythromycin which was okay it worked a percentage of the time but it’s an antibiotic so it’s temporary anyways. I’ve been living off of potato’s and applesauce for 6+ months. But just started an organic food meal replacement yesterday hoping to stop my weight loss.
@xajhx23 I hope it works for you. I understand what you’re going through I have severe mcas and my only safe foods are rice and potatoes so I totally get how awful a restricted diet can be-not mentioning the nausea from gastroparesis.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions