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PinkFlamingo's Post
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PinkFlamingo

5mo ago

Seeking Advice: Full Body Shivers with ASD and ADHD

Hi all. I was wondering if anyone that has ASD and/or ADHD has experienced a full body shiver? Mine is randomly, sometimes I don't know it is going to happpen and other times I can feel it about to start. There is no continuity with when it happens in terms of what is happening externally or internally for me, eg. weather, temperature, anxiety level, emotions etc If anyone has any experience with something like this, I would appreciate your advice with what it could be/treatment that you have tried. Thanks in advance 🙂

Your answer

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Kery

5mo ago

Occasionally but it's usually triggered by brushing a certain point at the back of my head. It physically makes me shake it off too, I have no control over it.
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Mar0113

5mo ago

As an Au/DHDer and also someone with POTS, I get them all the time. For me some are painful and others are just weird but yeah
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Butterflame

5mo ago

This has happened to me randomly as long as I can remember. Not sure if it's a neurodivergent thing but I've never pinned down a reason, I've always just shrugged it off and said "random shiver" because that's what it is lol. Concerns anyone new, but they get over it and learn to ignore it after a little while.
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AnimalBoy

5mo ago

From my understanding its usually explained by either misfiring nerves telling your body to do something it doesn't need to, which is more common with autism/ADHD, or a minor tick. I get it randomly too and sometimes it sets off a temperature control struggle and some overstimulation
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PinkFlamingo

5mo ago

Ahh ok. Thanks for sharing your experience. 🤗
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Cursednoodles

5mo ago

I also get this but I have no clue what it is why it happens or what to do about it
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PinkFlamingo

5mo ago

Ahh fair enough. Yep same place as me. ✋
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PinkFlamingo

5mo ago

Nope.. i can attest to that, cause I was on Epilim one time, my psychiatrist thought it would assist the anti-depressant in mood stabilisation. It just sedated me and I was on the couch sleeping for like 20 days until my family said.. you have to get off that med! I haven't always had the shiver... just over the past few years it has developed I would say. What about you?
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Eliza2.0

5mo ago

I get that regularly Are you Epileptic
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kxda

5mo ago

Yeah this happens to me randomly sometimes
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PinkFlamingo

5mo ago

hi there. Thanks for the reply. How often does it happen to you out of interest?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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