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PinkFlamingo

65d

Hi all. I was wondering if anyone that has ASD and/or ADHD has experienced a full body shiver? Mine is randomly, sometimes I don't know it is going to happpen and other times I can feel it about to start. There is no continuity with when it happens in terms of what is happening externally or internally for me, eg. weather, temperature, anxiety level, emotions etc If anyone has any experience with something like this, I would appreciate your advice with what it could be/treatment that you have tried. Thanks in advance 🙂

Top reply
    • Kery

      61d

      Occasionally but it's usually triggered by brushing a certain point at the back of my head. It physically makes me shake it off too, I have no control over it.

    • Kery

      61d

      Occasionally but it's usually triggered by brushing a certain point at the back of my head. It physically makes me shake it off too, I have no control over it.

    • Mar0113

      61d

      As an Au/DHDer and also someone with POTS, I get them all the time. For me some are painful and others are just weird but yeah

    • Starcycle

      63d

      This has happened to me randomly as long as I can remember. Not sure if it's a neurodivergent thing but I've never pinned down a reason, I've always just shrugged it off and said "random shiver" because that's what it is lol. Concerns anyone new, but they get over it and learn to ignore it after a little while.

    • AnimalBoy

      64d

      From my understanding its usually explained by either misfiring nerves telling your body to do something it doesn't need to, which is more common with autism/ADHD, or a minor tick. I get it randomly too and sometimes it sets off a temperature control struggle and some overstimulation

      • PinkFlamingo

        64d

        @AnimalBoy Ahh ok. Thanks for sharing your experience. 🤗

    • Cursednoodles

      65d

      I also get this but I have no clue what it is why it happens or what to do about it

      • PinkFlamingo

        65d

        @Cursednoodles Ahh fair enough. Yep same place as me. ✋

    • PinkFlamingo

      65d

      Nope.. i can attest to that, cause I was on Epilim one time, my psychiatrist thought it would assist the anti-depressant in mood stabilisation. It just sedated me and I was on the couch sleeping for like 20 days until my family said.. you have to get off that med! I haven't always had the shiver... just over the past few years it has developed I would say. What about you?

    • Eliza2.0

      65d

      I get that regularly Are you Epileptic

    • kxda

      65d

      Yeah this happens to me randomly sometimes

      • PinkFlamingo

        65d

        @kxda hi there. Thanks for the reply. How often does it happen to you out of interest?

        • kxda

          61d

          @PinkFlamingo a couple times a month maybe? I just randomly get full body shivers even if im not cold that last for a couple seconds its weird

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some individuals with ASD and ADHD have reported experiencing full body shivers or twitches. These can sometimes be associated with overstimulation, anxiety, or even just randomly occur. Some people have found that managing stress levels can help reduce the frequency of these occurrences. Others have sought medical treatment for these symptoms. However, it's important to consult with a healthcare professional for an accurate diagnosis and treatment options.

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