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488d

I was diagnosed with POTS in 2019 and have been trying to get an EDS diagnosis since around then, and I finally got one!! However, the doctor who finally diagnosed me told me I couldn't possibly have EDS because I "didn't have any symptoms." He had literally just met me and didn't ask about my symptoms and obviously hadn't looked at my chart. He just said this because I'm fat (and any health concerns I could ever have are because I'm fat and don't exercise and not because I have underlying conditions /s). He then asked if I had experienced joint dislocations or if my joints hyperextend, to which I said yes, weekly dislocated, and I've been in the hospital and physical therapy for it. He then told me he'd talk to his supervisor and get back to me, but I was probably just obese. Skip to Monday, and I get a call from him saying I didn't even need a referral somewhere, and they can just diagnose me there because there is so much supporting evidence. He then started to treat me like I knew what was wrong with my body while also implying that most people can't tell when something is wrong with their own body. I understand that sometimes you can't self diagnose because you need blood tests or medical scans, but I feel like there is a difference between the patient saying, "I have this, diagnosis me with no evidence", and "something is wrong and here are my symptoms and reasoning as to why you should test for this diagnosis". Also, it's your job as a doctor to figure out what's wrong with your patients, and blaming everything on your patient being fat isn't what's going to help treat the symptoms. I'm just so frustrated with doctors not listening to my issues because of how I look and present myself.

    • ninners

      488d

      Ugh I’m so sorry you’re having to deal with such an ignorant, fat phobic doctor! It is so frustrating how normal it is for doctors to write off severe symptoms as simply side effects of being fat. I wish I had some advice, other than just continuing to advocate for yourself and don’t let your doctors steamroll over you. If you have the option, looking for a new doctor might be helpful. I know that’s not always possible, but if you can, it may be worth looking into it. There are a lot of doctors that don’t require referrals. I’m so sorry that your doctor is completely writing you off and not listening to you. I hope that you get some good care soon!

    • TINAMARIE85

      488d

      Well, praise God that you got your diagnosis, now!!!!!!! 🙌🏽🙌🏽🙌🏽🙌🏽🙌🏽🥰🙌🏽

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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