Frustrated with Chronic Fatigue

I feel the same, I often sleep for 10+ hours a night and I never feel rested at all and still struggle to get up from bed. I've tried going to sleep later/earlier and sleep hygeine but it doesn't make a difference in my sleep pattern. If I am going somewhere or have an appointment etc, it helps to have it later in the day so I have more time to get up and prepare in the mornings. I volunteer at the moment and have requested afternoon shifts only due to my fibro. I also find settinf multiple al arms and moving my phone to the other end of my bed so I have to sit up to turn it off. I wish there was more awareness on chronic fatigue and rid the assumtion that we are just 'lazy'! Best wishes

ugghh i feel you. my more serious fatigue waxes and wanes but has gotten overall significantly better since my lupus is more under control and I'm eating for blood sugar balance and trying my best to stick to a good circadian rhythm schedule. can be hard when your sleep pattern gets thrown out of whack from being fatigued.. i think more than anything mushroom extracts (turkey tail, reishi, tremella), and gut healing things, bovine serum igG (immunolin) have been the most effective over time. i also take theracurmin for turmeric extract. but i think turkey tail (trametes versicolor), reishi, & immunoglobulins are the most effective for helping modulate the immune system. I'm having really steady improvement. and just started LDN last week, so that feels promising 🙌 i try my best to not stress out about being tired. and trying to unlearn that tendency, and create a habit of nervous system regulating & resting~ through great suffering we gain great wisdom. facing all the hard feelings are helping me grow and learn the best tools to navigate this difficult journey.

I know how you feel. Son of my family still expect me to run 9 miles 😂 I’ve accepted my illnesses (they clearly haven’t). Umm sometimes eating a good meal in the morning, drinking a fair amount of water, maybe coffee. Just some suggestions :) Celsius has helped some people get energy and help other areas of their health

I know I have Crohn’s and my inflammation is bad right now which also makes me more tired. I want my energy back too, does your doctor know those things aren’t working?

Yes totally understand. Fibro here as well

I understand how you feel. I've been experiencing symptoms since I was little and am still fighting for a diagnosis. This past week has been awful for sleep, you aren't alone ❤️

I've been tested positive for SLE or Scleroderma but it waxes and wanes. We still dont Have a true diagnosis. It's been Sjogrens Syndrome and just about everything except what it really is

Same boat ❤️

I agree it's not easy. I've been diagnosed about six months ago so I'm still trying different things to help me cope. The only thing that keeps me going is my little dog. 💕