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CassyCat

689d

Very frustrated. I was recently diagnosed with chiari and I'm not allowed to drive until September at the earliest. I hate relying on other people, but I had a seizure due to the condition. Got diagnosed at the ER after the friend who was visiting called for an ambulance. At least I know where all my health issues come from though.

Top reply
    • CassyCat

      555d

      @Jessie14 I havent been on here in too long lol. They aren't going to do anything. No medication, no surgery, nothing. I was told by the neurologist that my condition isn't even bad enough to have symptoms. And I DO have symptoms. But I'm thin so they think I'm healthy and fine 🙃

    • Jessie14

      593d

      Wow that sucks! I had a similar issue. I went to the ER for vision problems to be told I needed emergency brain surgery within 24 hours! When can they do the surgery for you? Are they going to decompress, shunt or something else?

      • CassyCat

        555d

        @Jessie14 I havent been on here in too long lol. They aren't going to do anything. No medication, no surgery, nothing. I was told by the neurologist that my condition isn't even bad enough to have symptoms. And I DO have symptoms. But I'm thin so they think I'm healthy and fine 🙃

    • misgendry

      662d

      Chiari is one heck of a condition. I was decompressed 9 years ago today, but I mostly had cognitive issues and pain and not seizures. Happy to talk if you want to message about it!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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