See Alike in...

Alike App

Browser

Annikaz

661d

Hey, I’ve been on my medical journey since I was 11 (currently 20) and have had no success in finding out why I’m neutropenic. In the past 3 years I’ve had increasingly more symptoms. I have all the symptoms and most blood test results of a lupus diagnosis but my doctor won’t say I have it. I’m super frustrated and was wondering if anyone had a similar experience?

    • Mini5_1

      632d

      So sorry to hear this! I can relate to your frustration! 2 yrs ago I was experiencing severe cases of anemia and low platelets! 3 hematologist couldn’t figure out the cause😢 I diagnosed myself. I had a series of test done from bone marrow biopsy, CBC’s and colonoscopy! Id had enough!!!! After discussing my issues with my husband I ended up diagnosing myself! The cause was due to the neupogen injections! I stopped taking it back in Nov 2021 and now my blood counts are normal.. minus the neutrophil count. But I feel great! Hopefully you can find answers soon 🙏🏾🙏🏾

      • Annikaz

        632d

        @Mini5_1 thank you for your response! I don’t take neupogen as my bone marrow produces the neutrophils but once they leave the bone marrow my body destroys them for some reason😭I hate that we have to live like this

        • Mini5_1

          583d

          @Annikaz not sure where you live, I’m located in the Maryland/ DC area. I can recommend some folks if you live in or near this area if you like?

    • BrookeAlyse

      659d

      Hi! I’m so sorry you’ve been experiencing all of that! To clarify, you’re experiencing neutropenia symptoms but your doctor isn’t diagnosing you with it?

      • Annikaz

        658d

        @BrookeAlyse no I was diagnosed with neutropenia when I was 11. I’m now 20 and I’m pretty positive I have lupus. I have all the symptoms and most blood tests results of lupus! But my doctor won’t diagnose me with lupus. My face and ears feel like they’re on fire daily

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion