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marymags

1y ago

Frustrated with my IIH diagnosis and treatment

hi, first time posting here. I'm 7months into my iih journey and from diagnosis it was all a whirlwind and had an emergency vp shunt placed. Unfortunately the shunt hasn't impacted much as I still have a lot of symptoms just no longer have paps, this has lead to my Dr now dismissing everything else as the optic nerves are OK. it's so frustrating to have what was a pretty active life to now being so restricted I can barely manage to anything now.

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