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Frustrated with the Autism diagnosis process

Erebyssian

600d

So the last psychological evaluation thing I had the woman told me there was no way I could have Autism because I made good eyecontact and conversation... Literally didn't even finish the first appointment with this new doctor and she told me I definitely have Autism based on all the flags and questions šŸ˜‚šŸ„“šŸ¤” I really wish more were like her and actually listen to their patients! I couldn't have imagined if I had to keep fighting for this process to be heard and how beat down I would have been for a diagnosis.

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21

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Generalized pain

Anxiety (Including GAD)

Autism Spectrum Disorder (ASD)

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    • Tashegranate

      594d

      Iā€™ve been told many times that I couldnā€™t be autistic because Iā€™ve functioned in normal school and work and it makes all the pain I went/am going through to do that feel so much worse

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    • Tashegranate

      594d

      Iā€™ve been told many times that I couldnā€™t be autistic because Iā€™ve functioned in normal school and work and it makes all the pain I went/am going through to do that feel so much worse

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    • hurt_copain

      597d

      I relied on well researched self/familial diagnoses for this stuff šŸ˜„ I think I'm both ADHD and autistic, actually

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    • Cloudlight

      598d

      I had a similar experience. All of the testing I took blatantly indicated I was autistic and yet the psychiatrist said that I must have social phobia (ignoring both my and my mother's accounts that I can be very socially obtrusive) because I performed decently in school and "acted pretty normal" as a child. Which shocked me given all the "quirks" my mother had mentioned during the discussion about my youth like obvious scripting during play, strict rule setting/abiding, clear special interests, and severe texture aversions. She completely invalidated my experiences and assigned a diagnosis that made no sense just to avoid the label of autism. Went to both my therapist and GP about it and was assured that the social phobia diagnosis was completely unfounded and my test results were very clearly indicating ASD. Definitely find another psychiatrist if you are able.

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    • Starfallintheveil

      598d

      ā¤ļø

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    • royalty

      599d

      Omg I was evaluated for autism when I was 12 or 13 and the mfs said that I have slow processing, traits of ADHD caused by anxiety, and severe social anxiety and depression, but not autism or ADHD. Like šŸ¤ØšŸ¤ØšŸ¤Ø

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      • Erebyssian

        599d

        @royalty I have to hold back from telling people like that off (the people who tested you, not you to clarify lol)

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        • royalty

          599d

          @Erebyssian Yeah same tbh. My parents didn't know any better at the time but recently my mom started realizing she has ADHD and she said now looking back their conclusions were very questionable lol

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    • PorcelainKat

      599d

      When I was first coming around to the idea of being autistic, I told my therapist about wanting to look into getting evaluated. She immediately shut me down, saying I was nothing like her actually autistic clients. That I made good eye contact and I didn't have (I swear to god she said this) "dead eyes." I spent the rest of the appointment pushing back against her views and that was the last time I ever communicated with her. After I got evaluated and diagnosed, I left her a voicemail saying I was Autistic and I was glad I didn't listen to her

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      • PorcelainKat

        599d

        @PorcelainKat Unfortunately, this is a really common shared experience with late-diagnosed people. Idk if you're AFAB, but it's even more so the case for us, because all examples are based on cis-men

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        • Erebyssian

          599d

          @PorcelainKat I am, but I've heard the most undiagnosed or miss diagnosed are AFAB people, that they have better coping and copying skills to "get by" and "pass" normally. Ps the voice-mail part sent mešŸ˜‚ I love that I'd do the same honestly. I want them to know they're stuck up and wrong.

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    • Adley

      600d

      Ugh Iā€™m sorry. Iā€™m glad you found someone now. My psychiatrist said there was no way I had autism and questioned my diagnosis because ā€œautistic people donā€™t want to make friendsā€ since I was talking about friends during my appointment. My jaw almost dropped

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      • Erebyssian

        600d

        @Adley I can agree with not wanting to make new friends lmao. It's odd how many little things the new doctor I went to asked, that I never knew could point to autism. Like that I LOVE heavy pressure. Like so if my partner lays on top of me (even tho ngl im crushed a little) the pressure feels so nice I usually tear up and cry a little its so comforting. Mind blown when I learned that's an Autism thing

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    • Venomwing

      600d

      I had a formal eval, too, but it was super general for every psych disorder in the book. Not ASD specific, even though that was what I requested. I was told the same thing -- no ASD because I had marginally good eye contact ( I was super focused on their eyebrow or shoulder or ear, never their eyes) and I could hold a conversation (canned, rehearsed responses based on things I correctly predicted they'd ask). I'm currently waiting on an appointment for a second opinion with a different doc.

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      • Erebyssian

        600d

        @Venomwing I do a lot of those things where I "passed" for not being on the spectrum, I stare at eyebrows most of the time and people think I'm making eye contact, or I look right beside their head. Mine was also very general, and not specifically into ASD, tho I mentioned that being one of the main things I wanted investigated. I am very relieved after this second opinion I was actually heard and asked the right questions and not disregarded when I disagreed or pointed things out that they assumed but was false

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        • Venomwing

          597d

          @Erebyssian that gives me some hope for a second eval. Here's hoping I get bumped up on the wait-list a bit lol.

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    • Revontulet

      600d

      I've been told by many that I am not autistic because I am affectionate. I wasn't diagnosed until 15 because of it. I really wish that atypical autism and atypical signs were more recognized and accepted. I can't imagine how many it could help.

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      • Erebyssian

        600d

        @Revontulet I feel. I'm over 20 and I only just got diagnosed because of how many older people in that line of work refuse to believe the newer findings about atypical autism šŸ˜”

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ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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