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Jenni_Lee

Updated 10mo ago

How Long Did It Take to Get Diagnosed?

So I’ve had focal aware seizures for years now and started trying to get diagnosed as of 2018 but still not luck with a diagnosis. How long did it take y’all to get diagnosed with your condition?

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D3stiny

2y

I kind of got diagnosed on the spot. When I had my first seizure I went to the er. My parents described my symptoms to the neurologist, and said that epilepsy runs in the family. It wasn’t that hard to connect the dots and I was immediately placed on Keppra. What I’d suggest is talk to a neuro about it, describe your symptoms and see if they can get you on an eeg
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Jenni_Lee

2y

That’s the hard part for me, I’ve had an MRI, and EEG and an ambulatory EEG but I’ve never had a seizure during one of those tests. And I’ve heard that focal seizures are pretty deep In the brain and can’t be easily picked up on tests unless they are happening
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Dijah

2y

Do you experience auras before a seizure?
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Jenni_Lee

2y

I think the aura is mainly the seizure like the de ja vu feeling and the stomach upset feeling and the disassociation
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Taintedoctopus28

2y

Well I was visiting my aunts house and I randomly had one in the bathroom. After that first time I'm not quite sure. I've been rediagnosed plenty of times in the past 15 years

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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