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Jenni_Lee

759d

So I’ve had focal aware seizures for years now and started trying to get diagnosed as of 2018 but still not luck with a diagnosis. How long did it take y’all to get diagnosed with your condition?

Top reply
    • Taintedoctopus28

      741d

      Well I was visiting my aunts house and I randomly had one in the bathroom. After that first time I'm not quite sure. I've been rediagnosed plenty of times in the past 15 years

    • Taintedoctopus28

      741d

      Well I was visiting my aunts house and I randomly had one in the bathroom. After that first time I'm not quite sure. I've been rediagnosed plenty of times in the past 15 years

    • Dijah

      755d

      Do you experience auras before a seizure?

      • Jenni_Lee

        752d

        @Dijah I think the aura is mainly the seizure like the de ja vu feeling and the stomach upset feeling and the disassociation

    • Jenni_Lee

      759d

      That’s the hard part for me, I’ve had an MRI, and EEG and an ambulatory EEG but I’ve never had a seizure during one of those tests. And I’ve heard that focal seizures are pretty deep In the brain and can’t be easily picked up on tests unless they are happening

    • D3stiny

      759d

      I kind of got diagnosed on the spot. When I had my first seizure I went to the er. My parents described my symptoms to the neurologist, and said that epilepsy runs in the family. It wasn’t that hard to connect the dots and I was immediately placed on Keppra. What I’d suggest is talk to a neuro about it, describe your symptoms and see if they can get you on an eeg

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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