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bluebloom

71d

What were the first signs of the disease for you? did you have symptoms that you initially thought were unrelated?

Top reply
    • agile

      71d

      for me it was fatigue that lasted weeks and then random fevers. 😓 Thought it was just stress or a bug. but eventually decided to get things checked out...

    • agile

      71d

      for me it was fatigue that lasted weeks and then random fevers. 😓 Thought it was just stress or a bug. but eventually decided to get things checked out...

    • Katie.Josh

      71d

      Hi there! The first sign was persistent headaches, and maybe unusual bruising retrospectively Thought it was normal at first. Lesson learned never ignore persistent symptoms

    • troop

      71d

      it started with strange rashes and frequent infections

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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"Frequent illness was a sign something was wrong, kids without medical issues don’t miss a week out of every month because they’re so sick and in so much pain constantly. I was feeling off for a few weeks, I could hardly get out of bed. It was frequent infection that didn't seem to go away! I kept getting cold and flu-like symptoms. One of the first signs for me was bone pain, particularly in my ribs and spine. I experienced significant weight loss without trying, which was my first clue. Initially, I was happy about it, thinking it was due to my new diet. But as it continued and I started feeling weaker, I realized something was wrong."

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