Finding Support for Teens with MS

I’m 20

I was diagnosed at 17! I am 25 now, but I can understand how much of a huge shift in your life it could be! I thought I'd never have a "normal" life. I had 3 flares in under 6 months and it took 4 doctors before anyone though "hmm thats odd". You can have a normal life, it may feel daunting now, but it gets easier with time.

Well it started with almost losing my vision in my right eye and having to have my mom help me walk so I wouldn’t fall over. Went to the hospital and so many MRIs and a lumbar puncture. I have two lesions on my cerebellum and some lesions on my spine which just happened a few months ago. I’m currently on dimethyl fumarate. I was 28 when I got diagnosed. Here lately I’ve had lots of days where I wake up dizzy and one morning I had to call my mom from the other room to help me get out of bed to go pee. I’ve had bowel issues along, aka not making it to the bathroom in time. It’s been rough because I can’t seem to find the balance of wanting to get stuff done and cleaning but then the next day I’m worthless and can barely move.

but yeah there’s hardly any groups for young adults/teens/kids with ms. ig theres of course not as many but it’s definitely hard

@ChloeWorm my whole thing was i was getting an mri for my sudden onset of tics (i was diagnosed with TS about a year ago) and some lesions popped up. they caught my ms VERY early, i had a tentative diagnosis of ms until last week when my last scan came in. since then it’s only really been acute symptoms, lots of fatigue. i was put on copaxone for a bit, but it wasn’t working as well as we had wanted so we’re gonna have to do some hunting i think.

I haven’t had any luck on finding groups of teenagers with ms, I was diagnosed last year at 17

Hey! Do you use Instagram? There’s a woman there who is now older than you but developed ms as an adolescent https://instagram.com/crystalbedoya?utm_medium=copy_link Also I volunteer for a really cool program called Peer Connections https://www.nationalmssociety.org/Resources-Support/Find-Support/Connect-with-Peers-One-on-One I doubt they have any teens, I’m young for a volunteer at 34 but still might be worth asking. Having friends who know your struggles is very important! I really hope you find some and would be happy to chat more if those resources don’t pan out.