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Nicole_J

691d

With fibromyalgia do anyone get tremors and body jerks??? Mine are getting worse.

Top reply
    • Achey_girl

      683d

      I’ve noticed I get neck spasms when I’m getting anxious/ about to have a flare up. It’s helpful to know when it’s coming but definitely makes the anxiety a bit worse.

    • Achey_girl

      683d

      I’ve noticed I get neck spasms when I’m getting anxious/ about to have a flare up. It’s helpful to know when it’s coming but definitely makes the anxiety a bit worse.

    • superstarrr

      684d

      Sometimes I will get a sharp pain out of nowhere that causes one of my limbs to jerk! I have tremors and muscle spasms too

    • 1Jonesy

      684d

      I do get random muscle spasms and shakes but I'm unsure if it's been because of my fibromyalgia. My doctor did say that probiotics may help with some of the symptoms of fibromyalgia have you looked into that? That is something that I'm going to be starting with a company called seed. It's a scientifically based probiotic that's supposed to be preserved all the way through the colon. It is expensive but maybe you can look into a similar probiotic and see if that helps. Good 🤞 lunck

    • livvie361

      684d

      Yes! I get random muscle spasms and often when I lay down at night I get sharp pains in my legs that cause me to jerk uncontrollably

    • JamesJC

      684d

      I really think it’s the med these doctors are placing us on. I mean full out body jerks right as I fall asleep enough to wake me and my husband up!!

    • meold

      689d

      Yes I have essential tremors. I hadn't associated them with my fibro but I suppose they could be connected. They are mostly in my left hand and happen when I am trying to focus on something like playing the piano or standing and reading my phone.

    • LadyPasta1

      691d

      I have hand tremors, mild mostly. But sometimes in bed, I have severe full body tremors or spasms. They're a lot worse than the kind a person gets when falling asleep. These will actually wake me from a sound sleep. Which is so frustrating because it takes me ages to fall asleep. Medical marijuana has helped with the sleep issue. I've had FM for so long, I don't worry much anymore about new issues unless I think it could be related to something other than FM. That's easier for me because I am a retired Registered Nurse. I have had the same doctor since 2015. When she has changed locations, I've followed her. She listens to everything I say and is super at staying on top of issues. Many years ago, I changed to female doctors because I found that most of them will listen to a woman much more thoroughly than the men do.

    • msnyrican66

      691d

      I have tremors and jerks too. At one point I thought I had MS. I try to do some light yoga relaxation exercises but really idk what could make this better

    • Beithne

      691d

      Yes! Driving is scary because my arms will randomly jerk. Relaxing sometimes feels like a seizure because of random jerks. It gets annoying.

      • JustRachelle

        691d

        @Beithne I really don’t like driving most of the time either because it seems as though my attention isn’t there.. I’m not focusing as I should.. which makes me nervous! The other day I thought something was wrong with my truck because I put it in reverse and it wouldn’t move so for 30 minutes I was sitting outside turning my car on and off …. Putting it in drive and reverse … and guess what was wrong.. NOTHING! 😩 my parking brake was down… but the fact that it took me so long to figure it out scares me

    • JustRachelle

      691d

      Yea I get tremors often throughout the day.. especially head and hand tremors.. but I also get shakiness/tremors throughout my body.. and it happens randomly.. or it’ll happen in my legs if I bend over or squat down or even if I’m standing for a while

      • Nicole_J

        691d

        @JustRachelle idk what to do because my doctors dont take it seriously because it’s not bad as they say but i know they are getting worse

        • JustRachelle

          691d

          @Nicole_J I would honestly switch doctors. My first rheumatologist back in 2016 didn’t seem to care or kind of brushed me off.. my current doctor listens to me and takes everything serious.. she is in the process of fighting with the insurance company to pay for aerobics therapy and massages as a form of treatment (which it is but they don’t want to pay for it of course) .. she also filled out the documents for me to get my handicap parking permit and I got it the same day… there are some doctors who will go above and beyond to help but you have to “doctor shop” and that’s okay..

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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