FMK

9d

How did your fibromyalgia start out like? What were your symptoms in the beginning?

acute lethargy

Neck Pain

Abdominal Distention

Migraine

Fibromyalgia (FM)

Skin rash

Generalized pain

Acute Anxiety

Headache

Chest pain

Acute Paresthesia of skin

Tinnitus

Syncope

Enlargement of lymph nodes

View all
  • hmmmm

    9d

    mine started with chronic migraines for a couple months and then neck pain that progressed to neck and shoulder pain. i started getting awful migraines whenever i would work on homework for one of my classes and then that december the neck pain started. that was the fall semester. then in the spring semester i would get headaches (just normal headaches) almost every night when i went to do any homework. and during that semester the pain spread to my shoulder. i went like a year with just the pain i think and there was a couple months where it decreased a bit but then it came back and hasn't left since (it's been 4 1/2 years since the initial migraines). i then started to develop fatigue, which for about a year i thought was actually just my asthma getting worse because it mostly presented after walking up stairs (i still sometimes confuse fatigue attacks and asthma attacks) and i actually talked to my asthma doctor about daily asthma medication (which i took for over a year with no effect). i believe the theory that fibro can start after being triggered by a stressful event because i really do feel like that one class set off my fibro (it was a methods class with A LOT of coursework). tldr: migraines, neck (and shoulder) pain, then fatigue

  • asdfghjkl

    9d

    chronic migraines & shoulder pain were my first indicators

  • Aiya_the_ill

    9d

    Mine started with a 24/7 tension headache from severe tightness in my shoulders. Then came major fatigue. Then it all went downhill from there 🙃

  • Bubbles18

    9d

    Mine started with horrific migranes and joint pain. Then I started feeling sick all the time and getting exhausted extremely easily.

  • Doc_Eosino_Thrill_Ya

    9d

    Mine was caused by a huge influx of white blood cells caused by asthma. I swelled up like 25lbs of fluid and everything ached like i was covered in bruises. It just felt like someone was punching me. I got the asthma under control but the pain stayed

  • faerywyrm

    9d

    Mine started with an increase in my migraines and trouble moving in the mornings. I was teaching in the field all day, climbing around the badlands. Within a month, my back and legs were very painful all day. It took five years to get the right diagnosis, and I had to change jobs twice during that time.

  • BJSTREEHOUSE

    9d

    My fibromyalgia started with pain in my hands. Couldn't stand for my husband to touch them. My Dr said it might be RA beginning. To take ibuprofen as long as it worked. (Bad advise as I ended up with an ulcer in my small intestine) I was taking it 4-5x a day. Shortly after I had debilitating fatigue. I couldn't get through the day without having to lie down for awhile. At 34 I knew this wasn't normal. Everything I did took tremendous effort, like I was moving through jello or sludge. Didn't realize what a brain fog I was in until I started getting better with medication.

    • faerywyrm

      9d

      I can well understand the frustration. I went through something similar starting in the third year of my battle. My rheumatologist tested me for RA and MS before confirming fibromyalgia. He told me that I had overdone so much that my fibromyalgia had become quite bad.

  • FMK

    9d

    What if I'm not having the migraines? I talk to my doctor today but I have just about everything other than that. Has anyone had really bad roaring in their ears so bad it hurts?

    • faerywyrm

      9d

      yes. My migraines were just an uptick in my chronic migraine. The roaring in my ears didn't really start until year 2. I was told it was tinnitus.

      • FMK

        9d

        I wake up and have the roaring and my jaw is all locked up and it's roaring so bad it actually hurts my jaw. I'm 21 and I haven't been diagnosed yet. I'm currently laying in bed with my feet and ankles all locked up. Some days won't be as bad and then some days I can't move.

  • Aimless

    9d

    Mine started like a thyroid problem (my thyroid is fine). My neck muscles swelled with the smallest stressors, I got pain that shot through my nerves and swirled around like marble all over, which caused fatigue so strong it made me nauseous to fight it too long without a nap. I gained weight without increasing my food intake. I developed food allergies that I've never had, and so many different types of hives too. As soon as I turned 30, this hit me like a brick. I had to quit working after 5 months of trying to keep my management position through the brain fog and pain. I just couldn't keep it up.

  • LadyPasta1

    9d

    Mine started with generalized pain all over. My husband couldn't even put his hand on my leg. I also had migraines. Eventually I eliminated the migraines when a specialist told me to go on an organic diet. It eliminated the migraines and decreased my overall pain.

  • Red914

    9d

    Mine started with unbelievable fatigue and muscle weakness. I'd collapse. I had already been living with chronic pain from a hip issue, so I really didn't notice the pain first.

  • Jimaine

    8d

    My pain was in my left leg and lower back. It was misdiagnosed as sciatica. It wasn't until the pain moved to my shoulder and a change of GP that I got the right diagnosis.

  • KhronicKoder

    3d

    First symptoms for me were pins and needles in my face (including in my mouth and eye). This spread to my hands, feet, legs, and back of the head with numbness. The sensitivity came next, a slight touch would make me jump and I had to get earbuds for noise sensitivity. The fatigue and fibro-fog came around the same time, and the widespread pain came a couple of months later, with all of the other symptoms (migraines, ibs, anxiety, etc). Took around 3 months for them all to show.

  • FreyaB

    2d

    Mine started with knee pain then to my hips, wrists, ankles, back, neck, jaw etc and while that was happening, I got pain and sensitive points on my body. I also experience headaches and general tingling.

  • chickybones

    2d

    Extreme daytime fatigue. Headaches every single day. Joints achy. It basically feels like having the flu imo

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.