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sabbymer

612d

I have been down a fibromyalgia rabbit hole. I have one or two things that I know I have but they don't explain everything fully. Largely I'm just undiagnosed and I've been tired of not knowing. I don't wanna let it stop me but I wanna manage it better. I think fibromyalgia explains a lot. I even have a lot of the little rare things and have complied a whole page. Does anyone have it that can share their symptoms if they are comfortable? I have trouble sleeping, chronic muscle pain, and memory loss. Though like I said I've had all kinds of things that if I had this I wouldn't be surprised at all.

Top reply
    • sabbymer

      609d

      Thank you to anyone that comments it helps a lot to know that its common for people to have it but not get diagnosed ๐Ÿ’™

    • sabbymer

      609d

      Thank you to anyone that comments it helps a lot to know that its common for people to have it but not get diagnosed ๐Ÿ’™

    • sabbymer

      609d

      uuuuuhg. yes exactly this! best of luck to you. I would write everything down that you experience and comlare it to fibro. They seem to like YOU to know all the details even though THEY are the friggin doctor. Then you can be like look at all these things...I have the fabric heaviness and the food adversities and by writing things down I realized more! ๐Ÿ’™

    • Aimless

      612d

      I am in the same boat. So many jumbled up symptoms. My throat swells every month but thyroid is normal. I get hives for no obvious reason. I've developed food allergies I've never had before. Not one or 2 foods, like 20. My clothes hurt. My muscles burn. I'm short of breath but my iron is fine. Every scan or test shows minor things with no obvious diagnosis. I'm tired of waiting for the right symptom to pop up in front of the right dr at the right time. Ugh.

    • sabbymer

      612d

      Wow that's almost the same as me! I have the skin sensations, light sensitivity, heat/cold sensitivity, tingly feet, and allodynia. I definitely have high social anxiety from it and tend to disassociate. Also have restless leg and muscles feel more painful at night when I'm trying to sleep. Sending strength!

    • mtngoat

      612d

      I have widespread muscle and joint pain, allodynia, and exhaustion. Sometimes I feel very over-stimulated by bright lights and loud sounds. I occasionally have strange sensations like things are crawling on my skin, or there's water dripping from the crown of my head down my back. I get pins and needles in my legs when I'm hot and randomly get muscle twitches. I also struggle with differentiating whether something is cold vs wet, like laundry. I'm sure there is more that I can't think of since I just woke up! ๐Ÿ˜‚

โ˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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