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JustRachelle

534d

How did your fibromyalgia start? What signaled you to go to the doctor? For me, I was living my best life and then one day I woke to a burning sensation in my hands and feet.. I shrugged it off and then over the course of a week I had pain in all of my joints plus that same burning sensation.

Top reply
    • MNVikingfan

      530d

      I started getting pain in my legs. I kept worrying it was a blood clot or something but there was never anything wrong.

    • MNVikingfan

      530d

      I started getting pain in my legs. I kept worrying it was a blood clot or something but there was never anything wrong.

    • Fibrofoggirl

      530d

      Migranes and Vulvodynia but when I was young I remember screaming with horrible leg pain in the cold which dr.s said it was growing pains

    • dan91

      532d

      We dont entirely no as i think i suffered it back in school but it took a motorbike accident to make it worse

    • poodlelover28

      533d

      I randomly woke up one day with neck and jaw pain. It eventually spread to my chest and back.

    • faerywyrm

      533d

      I had been dealing with chronic pain and sensitivity for 20 years. I kept being told either that it was arthritis or all in my head. Finally, I could barely walk. My gp sent me to get tested for MS. Turns out it was severe fibromyalgia. I am finally getting care for it!

    • arwenelf

      533d

      I'd had joint pain for years but anything I'd said to doctors had been dismissed so I saw no point going about this if all they would say was so take some paracetamol. My partner was the one that talked me into it. Moved to a new gp surgery and my partner helped with making the list of issues to address. He'd been getting more and more worried about how bad things seemed to be - not being able to open anything, no longer able to hold a pen to do my work, taking 3x as long to walk anywhere due to struggling both up and down hills etc.

    • lovette

      533d

      mine is secondary from my crmo, i think that its probably been manifesting for a while but unnoticed due to my crmo

    • Olawola

      534d

      Yes I would get tingling in my hands,feet, legs and mostly night leg pain. And then in 2020 I started to get more pain on the rest of my body

    • Red914

      534d

      I had lived with chronic back pain since I was 5, so I figured pain was normal. I had a series of illnesses in my late teens, and when I got pregnant at 20, the fatigue because unbearable. The doctors ran a bunch of tests and said it was probably chronic fatigue. My grandmother however thought it was fibromyalgia. I was like 'yeah, but there's not that much pain'. After my son was born it was so much worse. Again doctors ran tests, said it was all in my head. And then one day 5 years after the birth of my son, I was putting dishes away, and my arms just stopped working. I dropped a whole stack of plates, collapsed to the floor and blacked out. More tests, and this time we found the answer.

    • Doc_Eosino_Thrill_Ya

      534d

      I had a severe bout of eosinophilia. Basically for like 3 years, a type of white blood cell ate at my lungs. I had so much inflammation that I think it damaged the nerves or tissues. It made everything hurt. When I got better, the pain never rly went away

    • tangledplasticwrap

      534d

      I was laying in bed crying because my ankles hurt and the sheets hurt. My mom had said I something about fibromyalgia when I said my skin hurts. I said that since I was 16. I was 24 before a doctor did the fibro test and was like "I don't know how no one did this before"

    • Lala060797

      534d

      For me it was this terrible pain in both of my legs! I would wake up crying in the middle of the night

    • Mamaqueen

      534d

      I was already going to the doctor to try to see why I was in so much pain and all the time and finally after one of my 3 week blood test it came back that I had RA and the doctor did the fibromyalgia test on me and I hit all the marks. I wanted to cry during the test because it hurt so bad and then them saying I had it was horrible. I knew what was to come more blood taken and more test and more meds . Another journey! I got to say tho we are extra strong because this not only messes with our body but our minds as well !!!! We have to be more strong and tuff than the rest of people. So people pat yourself on the back and keep going we’re unstoppable

    • LaurElizabeth

      534d

      For me it started with light sensitivity rash, extreme fatigue, and than over a while slight body aches and pain that is just getting worse as time goes on… now it is bad I was dx with lupus and fibro. I have a plethora of symptoms that intertwine with both and it just is hard to manage everything.

    • Fairy_Sparkle

      534d

      The same thing happened to me it was during the beginning of the pandemic and I was online all the time so I thought it was carpal tunnel, but the burning feeling got so bad I couldn’t wear certain clothes and wind and slight touches hurt my skin. I knew it wasn’t normal. After a while more symptoms showed up and the joint pain was so bad I felt like I was constantly bruised. it took me almost a year to get diagnosed since my doctors didn’t know what else it could be.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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