Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1

Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

Elleee

Updated 10mo ago

Fibromyalgia, Rheumatoid Arthritis, or Lupus?

Has anyone been diagnosed with fibromyalgia & rheumatoid arthritis but knew it was lupus or potentially all 3 ?

Can you help? connect today

avatar

CheetahGirl

2y

I was diagnosed with fibromyalgia in 1990, and then nothing for 20 years. I kept telling my doctors that something was wrong, and I was met with a lot of doubt that I was actually experiencing something very wrong. In 2010,my amazing rheumatologist did all the right tests, and I was diagnosed with rheumatoid arthritis, and systemic lupus. Since then, I've gotten great treatment to control my symptoms, to prevent damage to my joints, and he put me on benlysta, which has had a wonderful effect. It makes a huge difference in my life. He told me that I probably had lupus a lot longer than I thought, but had been misdiagnosed for years. A lot of people with autoimmune disease have more than one. I jokingly tell people that when they were handing out autoimmune problems, I stood in line 4 times. LOL
avatar

Elleee

1y

I’m soooo late but I think that’s what is happening with me now . They said it’s rheumatoid arthritis cause my tests are coming back negative but my symptoms don’t all align . I keep getting severe colds / sinus infections .. recent kidney stones .. leg swelling .. rashes including on the scalp 🤦‍♂️
avatar

Paisley85

1y

I have Lupus, psoriatic arthritis, AND Fibro, and many other issues.
avatar

Elleee

1y

did they wait until you got positive blood work for lupus or were you diagnosed prior ?
avatar

snuggsonfleek

1y

Has anyone been tested for Sjogren's? Like what @CheetahGirl said most people that have an autoimmune disease usually have more than one. I was diagnosed with SLE Lupus in 2014 and barely diagnosed with Sjogren's in Apr 2022, but had the symptoms of both when I was in high school back in 2001 smh
avatar

ARose1

1y

I was diagnosed with Fibromyalgia 12 years ago, I am now being treated for preliminary diagnosis of SLE and RA with Hydroxychloroquine but I’m eager to try a new med or new doctor because the current treatment doesn’t seem to be helping enough.
avatar

TNMAGNET

1y

I am under investigation for all but so. far have a diagnosis of antiphospholipid syndrome and undifferentiated connective tissue disorder. My rheumatologist in London wasn't interested in me have moved to Birmingham and after a year of waiting have an appointment on the 31st 🤞🏻 for answers
avatar

GennitaB

1y

Me and they told me Jan 2022

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc