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Scijoe63

724d

Where is the most research being conducted for fibromyalgia—mayo, Johns Hopkins, Cleveland, etc. I’m tired of jumping from doctor to doctor. I’m willing to travel, be poked and prodded, ANYTHING. I need ANSWERS!

Top reply
    • MamaLaura62

      711d

      Sadly I have dealt with this for 23 years and not one Dr, not one Specialist and not one Counselor has had any answers for me. I learn more from the people who are living with this than what I have learned from the medical field. Their favorite phrase is Learn to Manage it. 😥

    • Dsparda

      710d

      There’s no back/spine (or medically whatever they’re called) doctors where I live so I had to travel to Denver and stay there for a week. Jus for the doctor to tap my knee, listen to some symptoms and end the visit after, no joke, 5 minutes with the words- “seems you have fibromyalgia. It’s incurable but it is manageable. It’s going to be a lifelong battle but you will learn to manage it. Try physical therapy. Thank you, have a good one.” I don’t understand medical professionals and their indifference/lack of knowledge/rejection of fibro. I’m sorry, I wish I had the answers for you :(

    • MamaLaura62

      711d

      Sadly I have dealt with this for 23 years and not one Dr, not one Specialist and not one Counselor has had any answers for me. I learn more from the people who are living with this than what I have learned from the medical field. Their favorite phrase is Learn to Manage it. 😥

    • Chel

      720d

      Following

    • AngelBehr

      723d

      Following

    • Scijoe63

      724d

      Yea, I’ve been looking for months. Nothing yet…

    • Scarlettrose

      724d

      Following lol

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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