Has anyone experienced strange rashes that suddenly appear with their fibromyalgia? I’ve had several episodes where suddenly it feels like my body is on fire and hives appear and change location on my body. Or suddenly my face and chest turns red and burns. Not a rash - but another time my tongue suddenly felt like knives were stabbing it, became swollen along with my neck and felt terrible for days. No doctor can explain it. No food allergies either.

Skin rash

Fibromyalgia (FM)

Edema and Anasarca

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  • HopeWarrior


    Is it random but consistent? Meaning it seems like you react to air? You may want to ask about Mast cell activation syndrome (MCAS) is one type of mast cell activation disorder (MCAD), and is an immunological condition in which mast cells inappropriately and excessively release chemical mediators, resulting in a range of chronic symptoms, sometimes including anaphylaxis or near-anaphylaxis attacks.Primary symptoms include cardiovascular, dermatological, gastrointestinal, neurological and respiratory problems.[ I react to air and it’s horrible

  • Zentoast


    Thank you for providing this. I’m so sorry you manage this. It’s sounds really difficult. How do you manag it actually?

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