See Alike in...

Alike App

Browser

TheUltimateGinge

250d

How much memory loss/ forgetfulness is normal for Fibromyalgia? I know brain fog is a symptom, but it feels like I'm forgetting more and more longer term memories AND shorter term memories. I look at pictures I've taken and either can't remember at all, it's foggy, or I only remember pieces. There's very few memories I can remember pretty clearly. I have a doctor appointment in about a week to talk about it, but I was wondering how much is normal?

Top reply
    • Hollygirl

      58d

      I was so bad I wasn’t able to recall anything. I had to have reminders to eat and drink. My favorite hobby(crochet) was like learning rocket science. The effects come and go, but I forgot a lot of things since being diagnosed

    • Hollygirl

      58d

      I was so bad I wasn’t able to recall anything. I had to have reminders to eat and drink. My favorite hobby(crochet) was like learning rocket science. The effects come and go, but I forgot a lot of things since being diagnosed

    • Possum8910

      245d

      I unfortunately don't know what's "normal" because to me everyone's normal is different. But I've had the same experience to the point that it's debilitating. I know it got worse on certain medications though.

    • 55isMe

      248d

      Mine started lifting with starting Imitrex and then pushing my limits while that med kept the migraine away. That and strategy game apps like solitaire, Othello, etc (non-stressful but should think ahead several moves, but dont necessaryily have to)

      • Reesie2013

        246d

        @55isMe I am only 46. I have a lot of medical problems and I am starting to lose my memory as well. I know what you’re going through going through going through.

        • 55isMe

          246d

          @Reesie2013 i was 29 at that time. It came about 90% back within about 9 months of using Imitrex. That was 30 years ago. Minor issues since (cognitively). Autoimmune. Both times, my autoimmune was due to my body trying to fight breast cancer and not recognizing the invader. This 2nd time, very little cognitive trouble, instead ot took it out on the ANS. So a lot more physical impairment. Bottom line, things change and can get better. If they arent 100% sure of the disease, its because there isnt a direct disease path and so things can get better instead of worse.

    • 55isMe

      248d

      So bad that there were times when i couldnt answer what my own name was. I could talk about RED and yet not connect the thought to STOP. dept of Voc zrehab testing, could still score 98% in math, but could answer a single english reading question because some sentences were undertmstandable. Other sentences, i could read everything but couldnt figure out what they meant together.

    • RobertB2523

      249d

      In my case, on a terrible day, I can't remember what I did even a moment ago. I struggle to find words or recall names. On a good day, there is no memory loss.

    • SandyMoss

      249d

      I experience this level of memory loss, but for me it is linked to post traumatic stress (and dissociation). so if your doc doesn't think it's from fibromyalgia or e.g. a neurological problem, then that could be another explanation.

    • lemonzest249

      250d

      For me personally, if I'm having a bad brain fog day I can forget entire days. However I also dissociate so the two go hand I'm hand. Its definitely worth breaching with your doctor but you are not alone at all in what ur experiencing <3

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Many individuals with fibromyalgia report experiencing brain fog and memory problems. Some describe it as taking longer to complete tasks, forgetting what they're saying mid-sentence, losing their train of thought, or struggling with short-term memory and retaining information. However, the severity of these symptoms can vary from person to person. It's important to discuss these concerns with your doctor, as they can provide more personalized advice based on your specific situation.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion