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Heatsponge

776d

Hello, I have been diagnosed with Fibromyalgia for about 2.5 years and I'm still learning to deal with it. I have tried different medications, and different doctors. the side affects from the pills are terrible qith veey little relief. My question is, does anyone have a medication they take that actually works and doesn't give you the horrible side affects?

Top reply
    • jerrielyn

      773d

      I've been getting them since my late 20s and I'm now 54 I'm getting ready to have an epidural and I pray it takes. I did have a 2 year reprieve off of the steroids (kenalog) after I had both knees replaced. Then 3 years later the DJD became active in my back so now I'm back to more steroid injections

    • jerrielyn

      773d

      I've been getting them since my late 20s and I'm now 54 I'm getting ready to have an epidural and I pray it takes. I did have a 2 year reprieve off of the steroids (kenalog) after I had both knees replaced. Then 3 years later the DJD became active in my back so now I'm back to more steroid injections

    • Heatsponge

      775d

      Thank you everyone, I've learned about some new medications my doctor has not even mentioned to me

    • jerrielyn

      775d

      I get steroid injections cause the fm causes these deep knots. The first time I had the injections I had 2 knots that had been there 30 years the muscles have a little atrophy from bring like that for so long but I am in less pain on one side and the other side it doesn't work as well on. It's something though. I know my pain will never be gone but I'll take any relief I can get

      • NotCrazy

        773d

        @jerrielyn I get steroid injections as well and they do help. For a very short time

    • Grace87

      775d

      😥

    • NotCrazy

      775d

      Effexer helped me a lot but gave me anxiety. I'm now on Pristiq and that seems to help. I have had to go up on dose two times which is a bummer

    • Magpi

      776d

      My doctor has me on a fairly low dose of 4 different medications. (Gabapentin, Meloxicam, cyclobenzaprine, and duloxetine) the side effects are pretty minimal for me and I'm never fully pain free but it's controlled enough that I can do most things. If I also add medical marijuana then the pain is almost gone, but I don't like how it makes me feel so I only use it when the painsamnia is bad. I also use a heating blanket (like a heating pad for my whole body) and gentle movement as tolerated. I have done a diet overhaul and that helps with some symptoms but has not impacted my pain much.

    • Taurusgreen

      776d

      I started an aip diet for my auto immune disease and have found it helps with my fibromyalgia also I have less down days may be something you may want to try.

    • Stitchgirl

      776d

      I have had the same problem. I tried several different meds and all had horrible side effects without actually helping with any of my pain. I honestly gave up on meds. I’ve been trying to focus on diet and pt. I also try to exercise but I say this cautiously. There’s a fine balance between not enough movement and too much movement. Also, there’s the fact that some days are better than others. Sometimes I feel good and I can do all the things and get all my pt and exercises done. Other days I barely get out of bed. It’s a constant battle but we have to keep trying every day.

      • Heatsponge

        776d

        @Stitchgirl thank you, I appreciate any advice. I have to say I am the same if I am too physical I'm out for the count for at least a day or two. Has focusing on the diet helped?

        • Stitchgirl

          774d

          @Heatsponge I’m pretty new to trying the diet but I’ll update once I’ve been going long enough to see if/how much it helps.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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